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Seachelles

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God never gives us more
than we can handle.

Posts: 681
Fredericksburg, USA, usa, 474, 157, VA, Virginia
Gender: female

Re: Update: Kathie Out of Surgery
Reply #25 - Jan 12^th, 2006 at 11:29am

Jim and Kathy,

Glad to hear that everything went well with the surgery. Dr. Steinberg is an amazing surgeon!! Jill called me yesterday and told me that things went well with Kathy's surgery.

Please keep us updated and I will continue to keep Kathy, you and your girls in my prayers.

Kathy will be up and walking in no time.

Michelle

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Michelle

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tiomasai

Experienced Poster

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Arriba Arriba!

Posts: 246
Queens, NY,
Gender: female

Re: Update: Kathie Out of Surgery
Reply #26 - Jan 13^th, 2006 at 8:22pm

Hi Jim:

I am so glad to hear that Kathie is doing well. She will be up and around in no time, I'm sure. I'm sure a private room helps big time. After my second surgery, I had a roommate in the ICU who had a heart/lung transplant. Bless his soul, he couldn't sleep. Needless to say though, neither could I. I got lucky and got a private room when I was moved to the regular ward, and let me tell - boy, did it make a difference! There's nothing like peace and quiet to rest a brain after brain surgery. When I came back to the hotel, I used to make everyone watch TV with the captions and no volume just because it was so much more soothing. Smiley

Anyway, I digress. I'm glad to hear that all is going well and my thoughts are with you all during the rest of Kathie's recovery and next surgery.

Best wishes,
Trina

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Mar

Ex Member

Re: Update: Kathie Out of Surgery
Reply #27 - Jan 13^th, 2006 at 8:49pm

Hi Kathie & Jim,

I just gotta say, we’re so very proud of you both. We know you’ve been through a lot, and we’re all keeping you close in our thoughts and prayers. One down and one to go… We’ll continue to be right there with you in spirit. You’re in great hands, in fact, the best in the world, IMO.

You go girl!! Stay strong! Smiley

God Bless,
Mar

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Lore

MM.com Benefactor

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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female

Re: Update: Kathie Out of Surgery
Reply #28 - Jan 14^th, 2006 at 7:25am

Hi Kathie and Jim,

So glad to her Kathie is doing well and in a private room. There's nothing like rest after brain surgery. Ya Think? Smiley

Laying all jokes aside, Kathie is in excellent hands. Just look at all the awards the nurses on that floor have earned. It's amazing. I believe they could teach other nurses how to do their job and do it well.

Jim, it's probably comforting to both you and Kathie for you to stay in the room with Kathie even if it is a cot. It's also nice to get away for a bit as well. I often took walks through the gardens or sat on the terrace among all the flowers. It was refreshing.

One down and one to go. You're half way there. Kathie has accomplished a lot so far. There's nothing like blood flow to the brain. Give it some time, Kathie will begin to feel better. It is brain surgery and it is a change.

We're with you both. We've either been there as a patient or in my case, a caregiver. We know what you're both going through. Hang in there. It does get better.

You and Kathie continue to be in our thoughts and prayers.

Hugs, Smiley

Lore

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"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson

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Runity

New Poster

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I was diagnosed with MM
since May 26, 2005

Posts: 40
Brentwood, USA, usa, 392, 195, TN, Tennessee
Gender: female

Re: Update: Kathie Out of Surgery
Reply #29 - Jan 14^th, 2006 at 3:07pm

Hi Kathie and Jim,

I am so happy to hear that you are doing better. My family and I have been saying prayers for you and your family. Rest assured that you are in good hands and that there are so many people out here who love you and are constantly thinking about you.

Please let us know how Kathie is doing after surgery number 2 on tuesday. Hang in there !! Its almost over!

take care, Smiley

yassi

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I am grateful to God for my life!

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kotipup

Experienced Poster

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My daughter, Daphne, has
Moyamoya

Posts: 247
Landenberg, USA, PA, Pennsylvania
Gender: female

Re: Update: Kathie Cured of Moya Moya
Reply #30 - Jan 24^th, 2006 at 8:12pm

Jim,

Hi. I am only now catching up on your thread. I just wanted to tell you and your wife congratulations for making it through the surgeries, and the wait before the surgeries! I'm so glad everything worked out well... I know how scary it is when you first get the diagnosis, and what a relief it is to finally see your loved one come through surgery.

Jenny (mom to Daphne. www.daphnestory.com)

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Lore

MM.com Benefactor

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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female

Re: Update: Kathie Cured of Moya Moya
Reply #31 - Jan 24^th, 2006 at 8:27pm

Hi Jim,

So glad to hear Kathie is on her way to recovery. The surgeries are over now and it will get better as time goes on. You're right when you mentioned Kathie was fortunate to catch this disease early without experiencing a stroke with dibilitating consequences. I too am grateful to Dr. Steinberg for saving Kevin's life. Even though Kevin had a significant stroke, with Dr. Steinberg's intervention, Kevin is doing very well and with therapy, he has done remarkably well. It's amazing what blood flow will do for the brain.

I also believe that anyone diagnosed with moyamoya should at least get an opinion from a MM specialist. Had I not gotten an opinion from Dr. Steinberg and ultimately surgery for Kevin by Dr. Steinberg, it goes without saying Kevin would not be here today. We will forever be indebted to Dr. Steinberg, Teresa and the entire Stanford MM team.

Please keep us posted on Kathie's progress. We want to know how she is doing.

Hugs,

Lore

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"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson

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Shan

Old-Time Poster

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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female

Re: Update: Kathie Cured of Moya Moya
Reply #32 - Jan 25^th, 2006 at 7:55am

Hi Jim & Kathy,

I'm a little late, but nonetheless, I want you to know that my you both are in my Smiley

, thoughts and prayers. I thank God that Kathie was able to get the necessary medical attention she was in need of! I had to have an emergency double bypass last year (May) since I was only properly diagnosed by my THIRD opinion! In fact, I had my surgery 2 days after being diagnosed, so I can relate to how quick Kathie had to have her surgery too. I too was having headaches for most of my life and by that time, I was experiencing TIA's. Anyway, enough about me. I hope that you and Kathie return home safely and have a full recovery. Cheesy

Jim, thank you for allowing us to be there for you throughout this experience. Smiley

We will always be here for you and your family! Please keep us posted on Kathie's recovery and let her know we're thinking of her. Smiley

Blessings,
Shan

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« Last Edit: Jan 25^th, 2006 at 7:57am by Shan »

"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis

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gotchlorine

Old-Time Poster

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Our daughter, Tara, lives
with MM

Posts: 776
San Jose, USA, usa, 24, 158, CA, California
Gender: female

Re: Update: Kathie Cured of Moya Moya
Reply #33 - Jan 26^th, 2006 at 1:47am

Jim and Kathie,

As you head off for Indiana tomorrow, I just want you to know that you have our well wishes and prayers for a safe trip home. We've so enjoyed meeting you and spending time getting to know you. Despite the circumstances that brought you here, you know I believe there are no coincidences, and that this is all very much part of God's plan. You're definitely part of our family, and we can't wait to see you again!!!!

You've thanked us for things we've done for you, but I can't even begin to tell you how much we get from the friends we've made and the relationships that are being built. (And you know how I love the "pay it forward" theory that you're starting to take part in!)

See you in a few hours for our ride to the airport!

Lots of love,
Jill (Campbell, Tara, Abby and Speedo, too!)

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lotsofkids

MM.com Benefactor

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Moyamoya...Oh boya boya!

Posts: 333
Akron, USA, usa, 421, 123, OH, Ohio
Gender: female

Re: Kathie's Story from Evansville, Indiana
Reply #34 - Jul 27^th, 2006 at 6:52am

Hello Kat and Jim,

I have just been dx'd a few weeks ago and as of yesterday I was in contact with Jill and Jolie over at Stanford. I will express mail my cd's to them and wait to see what Dr Steinberg has to say. I am 75-80% bilatterally occluded.

I have read your whole post and felt like I was in your journey. So glad your wife is doing well 6 months out.

Sorry your wife had mm, but thank you for sharing your story with us. (for us newly dx'd it is like oxygen to hear these success stories)

warm wishes and good health to you and your family,
diane : )

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Hmmm....seems I'm kinda "special" LOL

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Mar

Ex Member

Re: Kathie's Story from Evansville, IN Now W/END
Reply #35 - Aug 16^th, 2006 at 10:40am

Hi Jim & Kathie!

That’s wonderful news!!! I can never hear enough success stories. You both have been through so much; it’s truly a blessing to see our prayers answered and see you now travel that happier, healthier MM journey. We too owe immeasurable thanks to DJ and Dr. Steinberg, another true blessing!

Stay well and enjoy life!

God bless,
Mar

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Sara Experienced Poster Offline I am 15 years post-op and loving life! Posts: 208 Houston, USA, usa, 291, 279, TX, Texas Gender:	Re: Kathie's Story from Evansville, IN Now W/END Reply #36 - Aug 16^th, 2006 at 5:50pm Whoo Hooo!!! I Love Good News!!! God Bless! Sara
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