Has anyone experienced slight muscle twitches or spasms as a symptom of Moyamoya?

I have it!

My left hand twiches, if I am not on medicine. I had my surgeries 15-16 years ago and after about 12 years, I started having a lot of headaches and my left fingers move on their own.

I went to the doctor, and he ran tests and found that everything looked ok... I think he said I was "normally abnormal". Meaning I hadn't had any significant cchanges. I have low blood flow to the right side of my brain, although not alarmingly so. Long story short, I am taking Neurontin and it helps with my headaches and the twiching. Before I had my daughter, I was on Keppra and that helped to...

You are not alone!

-Sara

Hey Nikki,

It's been a while.  Trey has those twitches.  He has had them since his first stroke.  The doctor said it is "Clonis"--that may not be how you spell it, but it hasn't seemed to bother Trey.  He doesn't have them as much as he used to and now more on his left side than his right, which the left is the side that has more problems.  The first stroke affected the right side and he would twitch his leg and sometimes his arm then he had his second stroke and the right side seemed to stop alomost having the twitches and the left started the same leg and sometimes arm.  He will occasionally now twitch but it isn't severe.  I hope this helps.

Michell