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Time between diagnosis and first surgery? (Read 2967 times)
ladybugz
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Time between diagnosis and first surgery?
Apr 9th, 2006 at 7:14pm
 
Hey, this has probably been asked many a time already, but school has started afresh again and I was recently diagnosed within the last month. I've undergone a series of tests.  Now, I'm waiting to go back to the doctors in the next weeks to figure out the next steps to treat. I don't know how open the the Dr. at Stanford is in making appointments rigtht away...  I just don't want to waste my time in school as a very serious student and know that it all goes to waste, especially if I can have an operation soon.  I'm also not from California, so I don't know how it all works when scheduling appointments and living out of state. 

Thx!!
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Nathan
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Re: Time between diagnosis and first surgery?
Reply #1 - Apr 9th, 2006 at 7:49pm
 
Hey there,
My 10yr old son was diagnosed on Feb. 2, 2005 following a major stroke. He had his surgery on March 7, 2005. He had surgery on both sides, his recovery was fast but, it took awile until he could go back to school. He still has weakness on his right side, leg drop on right foot and major headaches. He has had many strokes and an aneurysm since surgery. I'm not sure if this helps but, I hope.... How did they discover you had MM? Good luck. God Bless.    Saundra
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tiomasai
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Re: Time between diagnosis and first surgery?
Reply #2 - Apr 9th, 2006 at 8:35pm
 
Hi Ladybugz,

It really depends on your situation.  I know Stanford will try to work around your schedule though.  If you are having lots of symptoms, I wouldn't risk waiting.  But again, you should discuss that with the doctor.  He/she can advise you properly for your situation.  

For me, I was diagnosed in late January 2005 but I got several opinions and finalized a decision by end of March and had surgery less than five weeks later (at Stanford).  

Hope that helps,
Trina
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« Last Edit: Apr 9th, 2006 at 8:36pm by tiomasai »  
 
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Bridget_K_Thomas
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Re: Time between diagnosis and first surgery?
Reply #3 - Apr 9th, 2006 at 10:05pm
 
My daughter Alison was diagnosed in late April 04 and surgery was scheduled for early May at Duke with Dr. Alan Friedman. However, she developed a severe staff infection from her arteriogram and was in the hospital for over a month due to the staff infection and surgery was delayed until late August due to her other health issues. She has had both sides done .Hope this helps.
Bridget
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« Last Edit: Apr 11th, 2006 at 6:46pm by Bridget_K_Thomas »  
 
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Emily
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Re: Time between diagnosis and first surgery?
Reply #4 - Apr 10th, 2006 at 7:05am
 
hi there, i'm not sure how it works over there... with insurance and booking surgeons etc.... but for me.. i was diagnosed with MM on Oct 13, 2005 and i have my first surgery on Nov 17.
that was pretty much as quick as they could get it scheduled and have my medications under control... i know it's also important to wait a month after a stroke before operating, severely reduces the risk of complications during surgery...

with 2nd surgery next week, i'm finding it really hard to stay chilled out and not doing my usual run-a-muck with all my bursting energy... jsut don't want to overdo it so close to the day!!!

arghhh can't wait for a couple of months down the track when i will be [fingers crossed] almost "normal" again!!! [hehe, who knows when i ever was??]
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ladybugz
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Re: Time between diagnosis and first surgery?
Reply #5 - Apr 10th, 2006 at 9:52pm
 
Thanks for everyone's kind responses!!  We'll see what happens in the next couple of weeks.  And someone asked how I discovered I had MM.... It wasn't because of strokes or TIA's, altho I fear something may come on soon...

I've had the strong symptoms for the past 10 years and before that but less.  Everything is progressively getting worse.  I've been in medical offices weekly for a year tested for every unrelated thing... and I kept telling people that I think it's something wrong with my brain (jokingly, not expecting it to be true).  I can tell I've declined in the past few years when I started college. My high school AP classes were more difficult than my college courses and yet I struggled more in college with reading comprehension and Chemistry problem solving skills.  Finally after exhausting every normal doctor in existence I saw a neurologist to test for median/ulnar nerve damage or brachial plexus stuff, but I kept telling them that it was my whole body sometimes and related to "hyperventilation" A lot of it was my knowledge of anatomy and science that led me to the conclusion of brain related problems. Everyday I woke up I was afraid I'd suffocate in my sleep and I figured that these thoughts and symptoms weren't for nothing.  I've persisted and doctors finally come to a conclusion.  I'm pretty thankful that I had actually taken the science classes that I did or I may never have persisted as much...considering since the age of 8 I've been told it was simply being small and having carpel tunnel.... it's 12 years later and no I don't have that.
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