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Post  Surgical Lovonox Injections? (Read 3493 times)
charl
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Post  Surgical Lovonox Injections?
Jun 6th, 2006 at 3:17pm
 
EmbarrassedDoes anyone have any experience with lovonox injections? My 11 year old daughter Molly had her surgery in Boston on May 16, 2006. We are back home now on injections. Molly developed a severe phobia while in the hospital to blood work and IV's she had a panic attack so bad they had to administer Valume. Have any other parents experienced this? She is having random bleeding of injection sites and had a rash. We have been home 2 weeks and been to the emergency room twice. How do all you moms get through this our experience was horrible. spme days i am so scared I do not know what to do. I would appreciate any wisdom any of you can offer!!! Cry
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my now almost 19 year old daughter/sister have moyamoya
 
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Nancy_N.
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Re: Post  Surgical Lovonox Injections?
Reply #1 - Jun 7th, 2006 at 9:00am
 
Charl,
              My daughter was on Lovenox injections before and after surgery. She wasn't on it real long after surgery though she didn't have a problem with the injections because she was in such bad shape, she didn't realize what was going on, I'm sorry that doesn't help you but I would call her Doc because I'm sure she can take asprin or something else like most others do. I'm not positive but I think most people get the Lovenox more so before surgery, they basically stopped Mnady's injection because we asked, she now takes 325 mg of ecotrin everyday. Hope it all works out. My thoughts and prayers are with you.
                                 Nancy Smiley
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redriot
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Re: Post  Surgical Lovonox Injections?
Reply #2 - Jun 7th, 2006 at 1:48pm
 
Charl,
I am so sorry that Molly developed a fear from her surgical experience. As a mother I can understand your concern. As a nurse I can give you this info:

Lovenox is given to prevent blod clots during the healing process after surgery. It works differently than aspirin which is why sometimes one is chosen over the other. I have seen patients who were discharged with 3-4 weeks of Lovenox, sometimes twice a day. The kind of surgery that Molly had would justify the docs wanting to prevent any possibility of a blood clot forming, because sadly, it only takes one to cause grave complications.   Sad
I would be concerned about the bleeding. My questions would be these:
1) Is the needle being moved (jiggled) after penetrating the skin? This can cause bleeding at the site.
2) Is she taking any of the following: Ibuprofen (Motrin, Advil, Nuprin, etc), or naproxen (Aleve, Naprosyn, Anaprox, etc) or any other nonsteroidal anti-inflammatory? These can also cause bleeding.

A number of other things that should be considered:
Has Molly had her INR level checked since being home? INR indicates the blood's ability to clot. The thinner the blood is, the higher the chance for bleeding at punture or incision sites.
Platelet levels should also be checked.
To get more up to date info I would encourage you to research and ask LOTS of questions of the doctors and nurses, until you understand all the info and options.
I know this is a scary time for you and my heart goes out to you. I hope some of this helps.
Sharon
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twinsmom
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Re: Post  Surgical Lovonox Injections?
Reply #3 - Jun 8th, 2006 at 9:01pm
 
Oh, Charl, I can SO relate to what you're saying!!  My daughter had the Lovenox injections for a few weeks after her surgery - and every day it was traumatic!!  I felt like the world's worst mom because she would BEG me not to give it to her and I would have to insist - she'd be screaming and crying and then mad at me - some days I'd have to leave the room and go hide and cry!!  I remember feeling overwhelmed, and scared, and tired and so stressed I'm amazed that all my hair didn't fall out!  However, I am living proof that you will get through this!! Just take it one day at a time.  Know in your heart that you're doing this because it's what has to be done.  My daughter was 8, and didn't understand that skipping the shot wasn't an option.  The good news is, when they eventually switch her to oral meds (aspirin, in our case) - you go from villain to HERO!!  You're the angel who stopped giving her the shots!!

Oh, and as far as the bleeding - my daughter used to have a little almost every day - we always needed a bandaid, but never more than one.  Do you have a visiting nurse coming to visit Molly?  If not, you should ask for one (call your primary, and they'll set it up) - that did a HUGE amount to reassure me.  It was good to have someone other than me and with a medical background  actually looking at my daughter every couple of days, so I could make sure I wasn't missing any signs of anything.  I think she helped me more than my daughter!!

Anyway, chin up, Charl, you're doing great.  Believe me, now that you're back at home, the worst part truly is over, you really will feel less panicked as time goes by. 

Our daughters are the same age (I have 2 11 year olds) - so feel free to PM me if you ever want to talk more!

We're all keeping you and Molly in our prayers!!

Love, Kristen Smiley
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"Come to the edge."   "We can't.  We're afraid."   "Come to the edge."  "We can't.  We will fall!"  "Come to the edge."  And they came.  And he pushed them.   And they flew.   by Guillaume Apollinaire
 
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charl
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Re: Post  Surgical Lovonox Injections?
Reply #4 - Jun 11th, 2006 at 12:23pm
 
Thank you all for all of your advic[email][/email]e!! Twins mom it is great to here from you again! Molly is a big girl she weighs 146 pounds can any one tell me how much water she needs a day?? They have her drinking 4/ 24 ounce bottles a day? This seems like alot to me I could use some advice!. How did you change from lovonox to asprin? ere you scared? Do you just give them the asprin the next day and pray for the best? I am afraid to stop the terrible lovonox! Did your daughter have any trouble with the change over? They are starting molly on one baby asprin on the 15th of June, just a few days! Any help is appreciated! Smiley
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twinsmom
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Re: Post  Surgical Lovonox Injections?
Reply #5 - Jun 11th, 2006 at 6:29pm
 
Charl,

We switched to aspirin when the surgeon told us to ( I honestly don't remember how many weeks post surgery it was) - and yes, I was VERY nervous - but in the end, she did fine, and wow did we appreciate no more needles!!!

As for the water, I know they have you drinking alot immediately after the surgery, but check with the surgeon- they forgot to tell us when to stop pushing the water, and a few months after the surgery we asked about it and he said - oh, you could have stopped that as soon as you went home!

However, I will say this - we found that when we didn't push the water, her       pressure and heart rate went up, so we find that our     s need to drink at least 50 ounces of noncaffeinated fluids per day to keep their heart rate and BP at a good rate.  I'm not sure that's usual, though, I think my     s just tend to be very sensitive, as lots of other things (for instance, antihistimines) tend to have the same effect on them.  I'm not sure if they determine the amount of fluids by age, weight, or individual circumstance, so my advice would be to check with the surgeon. 

Dr. Scott is very good about answering his email - and remember, there are no silly questions when it comes to taking care of your children! 

Also, think about the visiting nurse, it sounds to me like it would help you!!!

Glad to hear things are moving along for you and Molly!!  You're doing great, Charl!!  Keep up the good work, and remember, we're all here for you - ask all the questions you  want - this is the perfect place for that!!

Take care!! Smiley
Kristen
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"Come to the edge."   "We can't.  We're afraid."   "Come to the edge."  "We can't.  We will fall!"  "Come to the edge."  And they came.  And he pushed them.   And they flew.   by Guillaume Apollinaire
 
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