[color=Purple][/color]I am sorry if this is a repeated question, but I don't have the ability to sit and read through all the wonderful posts right now, though I have been (slowly) working on it!
     I was scheduled to have my SPECT test this last week, and I did fine with the first test, but when the second day came around, by fractional chance my nurse noticed that DIAMOX is a "third-tier Sulfa Drug", which on my chart (EVERYWHERE!) is listed in BIG, BOLD letters that I am DEATHLY ALLERGIC to ANY AND ALL Sulfa drug! I was ashamed of myself that I didn't research it (the drug) better; I usually do, and when I got home and checked the list I have of meds to avoid, sure enough, only 12 entries down the list was Diamox! Thank GODS that nurse caught that, or else the MoyaMoya and the PsuedoTumor Cerebri I deal with would have been moot...I'd likely have been DEAD! 
   The problem now is: What to do to simulate the 2nd portion of the test without running into Sulfa drugs? The Doctor in Nuclear Medicine at the hospital I was at looked up a few possible solutions, but each one had a Sulfa in it (there are 3 "tiers" to Sulfa drugs, the 3rd being deadly to me, 2nd causing horrible rash, pain and peeling, 1st causing incredible nausea and pain).
     Does anyone happen to know of an alternative that will adequately test what the Diamox was supposed to? They are talking about possibly doing a PET/CT scan, but I am worried that it won't show the same information....
     Any help would be greatly appreciated! We're all quite confused out here...   
Blessed Be,
~Jenn~

Hi~

Glad you found out about the allergies soon enough!

I too need the pretreatment that the last poster spoke of. The itching is horrible if I go w/o it.

Good luck and hope you find an alternative.

La

Jenn~

Do you wear a medic alert bracelet?
It could save your life.


Contacting Stanford is a good idea.
Here's the info. I'm sure your doctor has all this, but thought you might like it too.

Grary K. Steinberg, Md, PhD
Department of Neurosurgery
Stanford University Medical Center
300 Pasture Dr, room R200
Stanford, Ca 94305-5327

One of his nurses is Teresa Bell-Stephens, RN, CNRN
same address
(650) 723-5575

teresab@stanfordmed.org
tbell-stephens@stanfordmed.org

Teresa is very good at returning phone calls and emails.
If you don't already know, Stanford  has put out a GREAT booklet on moyamoya. I've been distributing them to all my doctors and anyone that wants one!!!!!

Good going!!!!!!

Linda (LA)