Hi, all!
We are about to embark on a trip to Utah & Co from the Tx gulf coast.  My husband is concerned that Kyle may experience difficulty in the high altitude due to less oxygen.  He's 13 and 9 1/2 yrs post-stroke/MMdx'd.  Our neurologist is out for a couple of weeks.  I have spoken with a headache specialist at Tx Childrens, but she is not familiar wtih MM and is checking with other specialists there for us.
Have any of you with MM had more trouble than the avg person would when you traveled to a higher altitude?  did your Dr. prescribe anything?
Thanks!
Hope all of you going to Orlando have a great time!  If we hadn't already planned this trip with my husband's family, we would have joined you!  Hopefully, next year!
Have a great time!!!

sue

Hi Sue!

How are you guys doing? I just wanted to offer my experience as reference.

When I was 10 (2 years post op) my family went to Colorado. We went skiing and were at a VERY high elevation. I did have more symptoms and migraines than I did in Houston. But, I was also in a different place and probably not sleeping as well as usual. There were no extra meds or anything that I took.

I remember at the time my mom blamed it on the elevation. But, who knows. I have been to Illinios more than 20 times and never had problems there. Just try to make sure Kyle gets rest and cross your fingers. I hope he has no issues at all.

I hope this helps a little. I just wanted you to know I think the possibility is there.

Take Care!

Sara

Hi, all!!  Thanks so much the quick reply (I LOVE this website, DJ!!!)

The headache specialist (Dr. Lebron) called yesterday and other than doubling his water intake (we all need to do that) didn't have any other preventatives.  She had checked with hemotology and concluded that giving him Aleve for acute pain due to a migraine would be ok and she prescribed Zofran ($$$$$$!!!!) for him in case he becomes nauseated (as he usually does with migraines).  He has been very good to increase his water intake lately.
Our no. 1 concern was the decreased oxygen.  We do have a phone number of a medical supply co in CO if we needed to rent O2.  Our in-laws travel with friends who use it when they travel to higher altitudes.
My husband remembers having migraines when his family went to Co when he was young and he didn't have MM.  And all they had back then was children's aspirin!!   Wish us luck!
Thanks for your input!  I'll report in when we get back if I have any useful info!
May God bless,
sue

We went to Utah about 1 1/2 years ago with my daughter Julie who has MM.  The morning after our return to Florida she had a few TIA's.  We have no idea if it was the altitude, the plane trip or the stress of the trip that triggered the episodes.  The doctors here are reluctant to say what triggers the TIA's.  I agree with taking it slow when you get there and also when you get home so your child can aclimate.

Have a great trip.

Cheri
Julie's Mom