Hello

I just wonder. After surgery is it possible that life become what it used to be before 
this diagnose. I have not been well enough to work for the last 2 years. It is not possible for me to play in the garden with my children, or go to the gym. Reading is very difficult sometimes. And in periods I get very tried just talking with my family or friends. Will things get better or is this how my life is going to be?

Janni

Janni wrote on Jul 27^th, 2006 at 5:11pm:

Yes it is possible to get your life back after surgery Janni, many here can attest to that, but it’s hard to say that for everyone diagnosed because each MM case is different with all the many different factors involved. I’ve seen so many here have drastic improvement after surgery, (Thank God) yet some others not as quickly for various reasons. For example… How PROMPTLY a MM case is diagnosed and treated is vital and could be life changing for their future. It also could depend on the type of surgery they have as to whether they would see an improvement right away. There is the direct and indirect method of surgery. With the direct surgery, you would get immediate blood supply to the brain, and the indirect surgery could take months to induce the new blood vessel growth to the brain to get the additional blood flow needed to hopefully lesson some MM symptoms. Also, getting back to normal would definitely depend on whether there was damage from a prior stroke, hemorrhage etc. But still, surgery is the only option with MMD in most cases. It’s a progressive disease and prompt management with a doctor who has experience with MMD is the best approach to managing this rare disease and getting your life back. I understand you live in Norway where you say they don’t have much experience with MMD… but all I can say to that is… please find a doctor who does have experience with MM and get to them ASAP. That's the best hope you have for getting your life back, IMO. We’ll help you in any way we can.

You’ll be in my thoughts and prayers.

Mar

It does take time. I agree with everyone before this post. Take the time to get used to the changes in your life. And always be thankful you are still alive. Even if it is hard now you will get use to the changes. I struggled to read a book which is one of my favort pass times. I just read everyday untill I started to get a headach. Then I would go and rest my eyes for a bit. Then did something else the reat of the day. Now I still struggle and I was up to reading for hours at a time. I also get extreemly exausted with my friends and they now can tell when I have had to much company and ask me if they should go. I find the more rested I am the more I can do.  You Will get your lust for life back. Take one day at a time if necessary.
Good luck and god bless,
Becky