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Anyone from Southern California? (Read 6833 times)
jenanshanesmom
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MM survivor

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Palm Springs, USA, usa, 55, 203, CA, California
Gender: female
Anyone from Southern California?
Sep 29th, 2006 at 2:22pm
 
Hi! 

I am from Palm Springs, CA and I was diagnosed and had my two surgeries in 2004.  I am fine physically now and getting stronger every day.  I would love to talk and maybe meet other MMer.  Please email me!

Paula 8)
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carpeDIEM
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Life just got tougher.

Posts: 18
Los Angeles, California 90042
Gender: male
Re: Anyone from Southern California?
Reply #1 - Sep 25th, 2008 at 2:29pm
 
I live in Los Angeles, CA in the Eagle Rock area. I have MMD and will be going to stanford next month for my surheries with Dr. Steinberg.
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_CJ_
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Re: Anyone from Southern California?
Reply #2 - Nov 18th, 2008 at 7:04pm
 
Hi there,

I was just diagnosed with MM.  I'm at UCLA right now and though my surgeries haven't been scheduled yet, it sounds likes that's what's in store for me.

I live in Long Beach (Belmont Shore specifically), but am all over LA area.

It'd be great to meet up for coffee with other MM-ers.

~CJ
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ted
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Los Angeles, USA, CA, California
Gender: male
Re: Anyone from Southern California?
Reply #3 - May 24th, 2009 at 8:21pm
 
Hey all, 

my fiancee Rebecca and I live in the san fernando valley.  She was diagnosed in 2006 and was with UCLA but we're going up to see Dr Steinberg at Stanford at the end of this week.  Is anyone else going up for the picnic on the 30th?  If so then we'll see you there!

Ted
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_CJ_
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Re: Anyone from Southern California?
Reply #4 - Jun 19th, 2009 at 6:21pm
 
Hey all,

It's now 1/2 way through June and I have no idea if anybody from So. Cal. has met up yet. I'd still sure love to though. Again, I live in Long Beach, in Belmont Shore, and would be more than willing to open my home for a gathering. Or, we can try to find a central location for convenience sake of course. My email address is JenniferDownUnder@gmail.com if anyone would like to just contact me directly just to chat, meet for coffee, or try to organize a little get-together. I'll put in the leg work; I just need a guest list!! Smiley

All the best,
Jen (CJ)
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Monica
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Posts: 39
Los Angeles
Gender: female
Re: Anyone from Southern California?
Reply #5 - Oct 3rd, 2011 at 11:58pm
 
Hi there!  I had my surgery in 2005.  I would love to meet up too!  I'm in Los Angeles (los feliz).  Feel free to email or call me to meet up as a group or individually.  email: moeblair@yahoo.com. phone: 310-694-1707.
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Charles Perry
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Re: Anyone from Southern California?
Reply #6 - Oct 25th, 2011 at 3:00am
 
Well, Paula congratulation for your successful recovery.. I m also from Southern California and suffering from diabetes.. but I control it by my own way..
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Amit
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Re: Anyone from Southern California?
Reply #7 - Aug 10th, 2012 at 10:11pm
 
hello all,
Just saw this post. We are in San Diego,  our son is a MMer
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ladybug3
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Re: Anyone from Southern California?
Reply #8 - Jan 28th, 2013 at 7:19pm
 
Hello. I'm in San Diego... I had surgery in 2006. I have never met someone with MM and would really like to do so.  My MM symptoms affect my life a lot lately. Maybe it's something completely unrelated.. I feel like it would be a very valuable experience and help me to understand myself and others better by meeting others.  Sometimes struggling with the day to day symptoms can be very challenging. I'm also interested in hearing others' experiences with MM. 
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carpeDIEM
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Life just got tougher.

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Los Angeles, California 90042
Gender: male
Re: Anyone from Southern California?
Reply #9 - Mar 13th, 2013 at 10:11pm
 
Hey I'm from Los Angeles! I'm 5 years out of surgery.
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CJ Reilly
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Re: Anyone from Southern California?
Reply #10 - Jun 25th, 2014 at 7:55pm
 
So Cal, you're invited... to our First Annual Moyamoya Life Celebrtion!

SAVE THE DATE: Sat., 8/23 from 5pm - 7pm
Fowler Museum at UCLA
-Meet other Moyamoya Survivors
-Learn from MMD Experts
-Enjoy refreshments
**Free Event**
RSVP: MoyamoyaCelebration@gmail.com or call me at (562) 805-7881 by 8/8 please.
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