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Anyone in St. Louis area? (Read 3174 times)
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I Love MM.com!

Posts: 5
ilex, Missouri  United States
Gender: male
Anyone in St. Louis area?
Jul 18th, 2013 at 6:49pm
I was recently diagnosed with MM and would like to talk to someone else who has MM. I have not had any strokes or anything that drastic as of yet. Does this disease progress quickly or over years?
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Our daughter, Tara, lives
with MM

Posts: 776
San Jose, USA, usa, 24, 158, CA, California
Gender: female
Re: Anyone in St. Louis area?
Reply #1 - Jul 19th, 2013 at 10:43am
Progression rates can be different from patient to patient. I would recommend to not make hasty decisions, but not to sweep it under the carpet, either. Try to educate yourself as best as possible, then move forward with your decisions. Having a doctor with a lot of moyamoya experience is high on the list of things to ask about. Ideally, you want someone who can tell you about their patients' long term outcomes.

By any chance, are you on Facebook? There is a decent size group of people on the World Moyamoya Day - May 6th page. People are being encouraged to connect with others in their geographical area, for support and awareness purposes. If you are on Facebook, you might give it a try. Good luck!

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