Courtney,
I am sorry to hear you are having problems  .  I did not personally have any of the symptoms that you are describing when I was diagnosed with Moya Moya but it does sound somewhat similar to what my sister has been experiencing....the neurologist has done an angiogram to rule out MM, that came back ok..then he did a MRI of her head and neck, that too looks ok...we are doing some testing on her adreneline glands now because she has been on her blood pressure medicine for five years now and her face still flushes etc.  She has times where her arm just loses control and flings about... she was complaining of tingling, like a small electric shock happening at times...Just some things you mentioned sounded like her....We don't have a diagnose yet but I will let you know what we find out, maybe it could be helpful on different avenues that your doctor could look at??
Good Luck and keep searching for answers for your ailments, hopefully you will be able to get a correct diagnose 
Your Friend,
Kathleen

Hey, thanks for your replies.   I have had an MRI, blood tests, an EEG and a sleep study.  All normal!  Kathleen, I don't have tingling like your sister...does she have spasms in the morning like me?  My seizures are directly related to my sleep and when I wake up/lay down..something along those lines.  Jenny, I'm happy Daphne is doing better...she's a cutie.  I watched you and your family on Mystery Diagnosis and that's why I am here.

Courtney

Mike,

You had seizures after sleeping?

Courtney

Courtney,

I think seizures occuring around sleep-cycles is pretty common (in people who are predisposed to seizures).   I have been told that the brain requires less oxygen during sleep, and so the body's adjustment to the different O2 requirements can trigger a seizure.   I'm not sure if everyone would agree with that, but it sort of  makes sense to me.    Daphne's seizures would often occur just when she was waking up, or when she started to get very tired.

I don't think the seizures would necessarily point to moyamoya disease... there could be many different reasons for them... but it wouldn't hurt to request that your next scan be an MRA study, instead of an MRI (you get the same images as with an MRI, but also with details of the blood vessels).

If things get any worse, though... if the seizures are becoming worse, if you start getting any other symptoms, I wouldn't waste any time in getting to an ER and insisting on more studies to get to the bottom of things.

Also make sure you are eating right, and getting plenty of rest    I'm not really one to talk, but we notice that when Daphne's body is stressed, she has more of a tendency toward seizures.  Giving her a healthy diet, and vitamins does seem to make a difference

Jenny