Hi Sandi, Welcome to our MM family!

I’m sorry to hear you were diagnosed with MM, but I’m sure glad you found us. There are beautiful people here that will help you along your journey in any way they can, and we’re here to tell you, you’re not alone.

You’re on the right path in learning all you can about this rare disease. That’s so very important! Knowledge will help you make the important decisions that are ahead, in a world where we see so many steered in the wrong direction simply from their lack of experience with MM the disease itself. So, the more you learn, the better and safer you’ll be.

Feel free to ask any questions. No question is too small, and know we’re here for you every step of the way.

Keep us posted...

Mar

Hi Sandi,

Welcome to the MM family.

You are not alone, you have your friends and this wonderful group of people who are now your MM family to support you through your journey.

There is a wealth of information on the board about MM the disease as well as all the sharing of experiences by MMers that is very helpful.

Like Mar and Shari mentioned, ask any questions.

Keep us posted on your testing and let us know how you are doing.

Lore

Sandi,  I sorry hear about your diagnosis!!  I was diagnosed back in 2000.  Since finding this sight I have found that I should have taken a much more active roll in my treatment than what I did.  Don't make the same mistake I did. ;

Looking forward to hear about your next test results.

Welcome and Good Luck!!!

Hi Sandi,
    Welcome to the mm family. As everyone has said we are here for you at anytime. We live one day at a time to the best we can.  Take care and godbless, Sharon

I do have lots of questions...both pre and post surgery related I would say.  I used to work out a lot.  I have patricipated in a couple of 10ks and one small Triathlon and was hoping to compete this year to commemorate my 40th.  When I first was discharged from the hospital after my TIA (but before I was diagnosed) I was told no more strenous exercise, no alcohol, no long air trave, and I was placed on Coumadin and Lipitor.  Since the diagnosis, I was told I could exercise, travel, drink in moderation, came off the Coumadin, but got an increase in the Lipitor.  I am sure every case has its differences, but I am hoping I will come out of this with the ability to do what I did before this experience.  Can I exercise and run tris, can I ride on a rollercoaster, will I be on Lipitor forever.....will things be somewhat normal?  Again, I know everyone may have a different perspective based in their own personal situation, but I am just hoping for some insight as to what limitations I will be faced with as a result of MM.  Thanks so much. 
Cheers
Sandi
PS - I am working on educating a lot of people about Moya Moya!