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Shan Old-Time Poster Offline MM Survivor ~ May 27, 2005 Posts: 849 Honolulu, USA, usa, 376, 346, HI, Hawaii Gender:	Moyamoya and Ibuprofen May 29^th, 2008 at 9:34pm Has anybody heard that you shouldn't take Ibuprofen if diagnosed with Moyamoya? I haven't taken Ibuprofen since my double by-pass in 2005 and am just curious to see if anybody has heard of this... Thank you, Shan
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moyamoi Ex Member	Re: Moyamoya and Ibuprofen Reply #1 - May 29^th, 2008 at 10:12pm Hi Shan, I have heard this too so I don't take it at all - you have to check as it is present in most headache stuff Moi
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Moyamoya and Ibuprofen Reply #2 - May 30^th, 2008 at 8:36am Shan - I've heard this too but I thought it was more because if you are already taking a blood thinner, like aspirin, ibuprofin will thin your blood even more as it, too, is a blood thinner. I would check with your doc. -Shari
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pasnblu Experienced Poster Offline Diagnosed April 19, 2007 Posts: 112 Fernandina Beach,Florida 32034 Gender:	Re: Moyamoya and Ibuprofen Reply #3 - May 30^th, 2008 at 10:53am I distinctly remember being told to not take Advil or any ibuprofen, but a friend of mine was told that Tylenol can contribute to liver problems, and being on Lipitor, that is a concern. so I guess I will just bite a leather strap or a bullet:-) LOL
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Becky Old-Time Poster Offline Stroke10/03, Diagnosed6/04, Unilateral Surgery9/04 Posts: 532 Minneapolis, USA, usa, 303, 84, MN, Minnesota Gender:	Re: Moyamoya and Ibuprofen Reply #4 - May 30^th, 2008 at 1:07pm I would check with your nurologest and ask. Some medications react diffrently with others. Like the Ibprofin with blood thinners. One would hope that even medication for illnesses like strep may have sideeffect with the medication you are currently takeing and the doctors should know. Good luck. Becky
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Shan

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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female

Re: Moyamoya and Ibuprofen
Reply #5 - Jun 2^nd, 2008 at 8:09pm

thanks for all the replies!! ; Grin

i will ask my neuro at my next appt. looks like for the most part, ibuprofen shouldn't be taken. i'll let you know what my neuro says...

as for aspirin and my blood thinning...i'm still taking 325 mg aspirin and Aggrenox. only thing, i'm also developing gastritis/ulcers Embarrassed

which could probably be related to these.

anyone else experiencing stomach problems?? Cry

and if so, what do you do or take? i'm taking nexium and mylanta until my endoscopy/colonoscopy in 2 weeks...

thanks again for all your replies Wink

aloha,
shan

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« Last Edit: Jun 2^nd, 2008 at 8:14pm by Shan »

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Annica

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My daughter lives with
mm

Posts: 173
Stockholm, Sweden, europe, 317, 154
Gender: female

Re: Moyamoya and Ibuprofen
Reply #6 - Jun 5^th, 2008 at 5:33am

Hi Shan!

I work as a counceler in cancercare and have learned that aspirin is a well-known trigger for ulcus/gastritis. My daughter who has moyamoya since 2002 is taking aspirin daily as there is no other oral blood-thinner in Sweden recommended for children. As soon as she reaches adult age, 18 or so, I will ask her doctor to change it to somethong else, for example Plavix, a very expensive but effective AND mild (as far as it comes to sideeffects) bloodthinner. Take care of yourself and your stomach! Wink

Annica

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moody

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In all the thing I lost
I miss my mind the most.

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richmond, USA, VA, Virginia
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Re: Moyamoya and Ibuprofen
Reply #7 - Jun 7^th, 2008 at 2:14pm

Hi Shan, I took aspirin 325mg as blood thinner, and I have problem with my stomach also, I don't take any thing for it but I stay away from spicy food and coffee, it help me.

My neurogogist told me do not take Ibuprofen, he did explain why but I don't remember what he said Smiley

, if you find out from your doctor please let me know.
Kieu

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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Moyamoya and Ibuprofen Reply #8 - Jun 11^th, 2008 at 9:24am Shan - I have been on prilosec for at least 10 years now - I've had really bad acid refulx almost all my life. I'm guessing that is helping me with any other irritations that may be caused by the aspirin. I am only taking 81 mg though. -Shari
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Janko Experienced Poster Offline Take baby steps...one step in front of the other!! Posts: 209 Kekaha, USA, usa, 326, 333, HI, Hawaii Gender:	Re: Moyamoya and Ibuprofen Reply #9 - Jun 11^th, 2008 at 6:16pm Hey Shan, I was also told not to take any ibuprofen (advil, motrin, etc.) after my surgeries. I pretty much stay on my regiment of baby aspirin and I'm okay with that. Alohas.... Jan
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Shan

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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female

Re: Moyamoya and Ibuprofen
Reply #10 - Jun 27^th, 2008 at 7:13pm

hi shari,

i know i'm replying verrrrrrrrrrrryyyyyy late--but i too was taking prilosec 2x a day for a few years, but i have recently switched to nexium. i guess my body became immune to the prilosec. is it still working for you?

i was having stomach pains--my dr. said probably due to the aspirin (325 mg) and aggrenox (also contains aspirin) and nicacin that i take--all of which upsets and can cause gastritis/ulcers in one's stomach. thererfore, he switched me to something stronger (nexium). i also had a colonoscopy and EDG last week. good news! no ulcers, but i do have gastritis....

hope all is well...

take care,
shan

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"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis

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Soccer man Sam

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Diagnosed in Nov 2001

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Clovis, USA, usa, 211, 221, NM, New_Mexico
Gender: male

Re: Moyamoya and Ibuprofen
Reply #11 - Jul 18^th, 2008 at 6:57pm

my son has been having stomach problems the last few months. He is on coumadin, aggrenox, and 2 baby asprin a day. They thought it was his gall bladder, then they did a CT angiogram and discovered that he actually has moyamoya in his bloodvessels in in bowels. They are trying to figure out if they can do a bypass surgery to supply more blood down there. The Dr's have not found anyone else with moyamoya anywhere else but the brain, so this is causing delay in surgery. Has anyone else heard of the disease being found in other parts of the body?

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Shan

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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female

Re: Moyamoya and Ibuprofen
Reply #12 - Jul 21^st, 2008 at 2:43pm

Aloha Soccer man Sam,

Wow--no, I personally have not heard of MM in other areas other than the brain. Smiley

However, I was advised that since MM is a vascular disease, when I tore my achilles tendon and was in a cass--my medical team took extra precaution (via ulta sound) to ensure I didn't have any blood clots along my leg/thigh since I was not able to exercise/move it. I don't believe they were specifically looking for MM, but more concerned of blood clots forming...

I hope you don't mind, but I am going to post your reply in a new thread in hopes that others may read it and respond. I think many may overlook your post as it is currently located under my post regarding MM and Ibuprofen.

Take care..and I hope that we (members of this site) are able to help you find out more info with your post. As always, seeking additional opinions is encouraged. Wink

Aloha,
Shan .

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Emily Senior Poster Offline Diagnosed Oct 2005. Direct bypasses: Nov 05 Apr 06 Posts: 259 Brisbane, Australia Gender:	Re: Moyamoya and Ibuprofen Reply #13 - Aug 1^st, 2008 at 6:52am in only ever take paracetamol, and often a lot of that. i think the only concern with ibuprofen, is it says to consult your pharmacist or someone if you are also taking aspirin. as far as i know it wouldn't cause any real concerns for mm patients. just ruins my stomach that's all.
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