Yep, BP is a constant concern. I stopped the 40 mg of benazapril after surgery and for awhile everything was going pretty well. I've been told to shoot for a pressure in the 130's/80's range - with 140's being OK. I'm on 5 mg of benazapril since a few months post-surgery, but the pressure is ooching up again 150's -160's/80's-90's.(nine month post-surgery). Saw my PCP yesterday, he wants me to keep a careful record over the next couple of weeks, make sure that I continue my exercise routine, then he'll consider increasing the BP medication slightly. He said it could be related to my body adjusting to the estrogen changes that come with this peri-menopausal thing. Dr. Steinberg wants my BP a little high to keep the blood flowing, but not this high, I think. It's likely that the BP goal would be different for every person with moyamoya.
Kim

The night of my first surgery, I had 4 TIAs all related to my blood pressure getting to low.  Once they tied the two together, they kept a careful eye on it.  I normally have good blood pressure, but they are concerned about what may happen if it gets low again.  Since the surgeries, I have maintained good pressure.

Sandi

The pressure' on!

I was told (by Steinberg at Stanford) to have my goal bp at about 140-150/80-90 to keep the bypass open and flowing.

Was a scary time getting used to actually having that range as a goal vs being in a potential of stroke bp range.. I'm comfortable with it now and also keep close check on it.

I am alert for nurses who 'tisk tisk' at my higher range/goal. Or who seem to want to keep the pressure lower.

I have a medical sheet that I carry with me (need to get the bracelet soon as it could be a live saver) that says on the top
"Due to MOYAMOYA DISEASE --avoids vasoconstriction and keep BP elevated. maintain Blood Pressure at 140-150 / 80-90"

The sheet is pretty cool as it lists my meds, when I take them, the dose, etc

also info on husbands name, phone, etc. Avoid bood thinners, and vasoconstrictos like epinephrine, use Tussin DM for coughs, etc...
friends, doctors, pharmacy,  ALLERGYS  -- contrast solution for angiogram/ SPECT (urg!!!!) , date of by-pass and vena cava filter, stroke dates, Phone numbers to everyone.....

It's really a help when going to appts -- I just have then photocopy it and all the info is right there in an easy to access format.

I feel 'sluggy' when my bp is low. This isn't a medical solution, but a tiny dab of salt can help (I cringe when I were this as I'm sure there's a better solution).
Keep the H2O going!!!!

So hope everyone keeps their bp where it should be and I rellte to the struggles about all this.

Linda A.