There is a new show coming on called "The Doctors" that premiers on September 8th.  I think it's going to be a very interesting medical show.  You can go onto their website and actually tell your story.  Check the website out at www.TheDoctorsTV.com.  Also, if you go to this link http://www.thedoctorstv.com/ds/tell/45 you can tell your story under the topic of Rare Disease or Medical Mysteries.  I told my story and I hope that you all take the opportunity to tell yours.  Maybe if enough of us tell our stories, they will feature MM on the show.