Hello everybody!

My daughter had MM surgeries on last year 9/2007.  Since she loves to play in the water, we started her swimming lesson since July 2008 with lots of concern.  I watched closely when she is on lesson for 30 minutes twice a week.  Because of breathing issue, I was worried a lot.  However,  she is having TIA often since November.  Does anybody try swimming after surgery?   I stop her swimming lesson last week.  After she got lesson,  at least I felt she got healthier but, I guess not.  She ate more after swimming exercise.... She didn't have TIA for August, September,  and now     

I don't think swiming is bad but your daughter maybe shouldn't be in lessions yet. She needs to know how much her body can handel before she gets to tierd and her blood pressure goes up to high. I started working out strength training and arobics classes. I whould have to stop once i felt dizzy and very out of breath. the best way to recover is excersise, I feel.
I hope this helps.
Becky

I am so sorry to hear this, my dauhter molly is the same way. She just can not do since surgery. She has not even been able to handle the stress of school.I think everyone is different and i have adopted the saying when trying to explaine to people"Molly has moyamoya and she has these limitations as a result... Because that is (just the way it is for molly since surgery)."my point find her safety zone and keep her in it learn as you go as to what she can handle, my daughter can not since surgery.As to the needles my daughter does this as well, she was diagnosed withPtsd and anxiety as a result of surgeries.
best wishes'
amiee & molly

My daughter had surgery with Dr. Steinberg when she was nine, August of  2007.  It's been over a year now and she continues to have mild TIAs almost every week, for the past year.  She loves swimming.  In fact, she got back on the swim team about 4 months after her surgeries.   Interestingly enough, I don't recall her having a TIA on the days she practices or had swim meets.  In my daughter's case, I believe swimming has been a benefit.  She swam in the summer league and she's now swimming in the fall/winter season.  Her practices are very strenuous, swimming back and forth for an hour, with dives, and lengthy underwater swimming.  I don't believe she holds back in practice and certainly not in her meets.  She's one of the top swimmers on her team and she dreams of making it to the Olympics one day. 

Dr. Steinberg has been unable to explain her TIAs.  We've taken multiple SPECTs, MRAs, CT Scans, EEGs, and multiple visits to Neurosurgeons and Neurologists at the Washington Children's Hospital.  We've taken her to therapists/child psychiatrist, thinking that the TIAs were not physiological, but I think we were proven wrong.  However, she did overcome her fear of I-Vs and needles and she's learned to 'manage' her TIAs.  In the past, the TIAs would frighten her causing her to cry, hyperventilate, and exacerbate the TIA.   Hence, the effort and dollars were well worth it.

My wife is taking her to see our family doctor tomorrow to determine if Keppra (anti-seizure med) is right for her.  I'm not convinced that it's seizure related and I not comfortable with the side effects.  Nevertheless, I'm worried about her TIA one day leading to a stroke.  Any thoughts or advice would be greatly appreciated. 

Michael