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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › seizures and mayo mayo

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seizures and mayo mayo (Read 3052 times)

krissjess

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seizures and mayo mayo
Apr 13^th, 2009 at 8:29pm

my 2 1/2 year old started having seizures when she was 1 year old but they really dont no if she has epilepsy her last seizure she had no feeling in one of the sides of her body they thought she had a stroke shes on keppra right now does any one else have a child or no any on with this condition i neen to no if its epilepsy or mayo mayo please help iam so scared for my child

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Little Luca

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Whatever it takes

Posts: 346
Somerset West, South Africa
Gender: female

Re: seizures and mayo mayo
Reply #1 - Apr 14^th, 2009 at 2:47am

Hi

Moyamoya results in strokes, not epileptic fits as far as I know. Moyamoya is diagnosed by a neurologist after brain scans are done. The type of scans from which moyamoya can be diagnosed are MRI, MRA and angiogram with dye. The angio with dye is the best but with a child they will need to be put under anasthaetic to keep them still while scanning.

The biggest problem lies with neurologist not familiar with moyamoya. You need to try to convince your doctors to do the brain scans and then you need to get the results to a neurologist with moyamoya experience. All of the doctors listed on this site will give you an opinion free of charge.

Good luck and stay strong
Mark (Luca's Dad)

1st stroke in September 2008, age 10 months
Bi-lateral mm diagnosis
2nd stroke in November 2008, age 1 year old
Left side surgery in December 2008
13 years on now
Doing just great!

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mc823923

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My dauaghter Annamarie
lives with mm

Posts: 83
Baton Rouge, USA, usa, 345, 271, LA, Louisiana
Gender: female

Re: seizures and mayo mayo
Reply #2 - Apr 14^th, 2009 at 8:07am

Hi,

Yes, children can have seizures with moyamoya. My daughter had several and then also had a stroke. At 15 they sent us to a neurologist for testing after what they thought was another seizure to be put on medication. It was then that we got the diagnosis. Just hang in there and get her scans to a specialist. My daughter had her surgery with Dr Steinberg a year ago tomorrow. She is doing great. Keep us posted. My thoughts and prayers go with you and your daughter.

Margaret

Margaret

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Little Luca Senior Poster Offline Whatever it takes Posts: 346 Somerset West, South Africa Gender:	Re: seizures and mayo mayo Reply #3 - Apr 14^th, 2009 at 9:16am I stand corrected, thanks Margaret
Back to top	1st stroke in September 2008, age 10 months Bi-lateral mm diagnosis 2nd stroke in November 2008, age 1 year old Left side surgery in December 2008 13 years on now Doing just great! IP Logged

Mar

Ex Member

Re: seizures and mayo mayo
Reply #4 - Apr 14^th, 2009 at 12:50pm

A person can be diagnosed as having epilepsy simply because they have repeated seizures that start in the brain. Over 50% of the time the cause of epilepsy is unknown, so it’s important to note that seizures are one of the symptoms of MMD. So proper testing should be done. The angio is the definitive test for diagnosing MMD.

If your daughter has MM, she is at risk for more strokes and needs to be treated ASAP by an experienced MM neurosurgeon.

My thoughts and prayers are with you.

Mar

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