joshandmom9770
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Posts: 64
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thank you so much for the info , as a parent we want the best for our kids , all of you have been most helpful , and as i am not that puter literate i have been having a few problems responding to some of the posts , i will get it figured out , lol , tring to keep Josh busy and have some fun b4 this summer before he has to have his surgery right now the hardedt part is waiting for a date all i know is that it is in August prolly towards the end of August, when the 2 Drs can get a date together , and being in Toronto and Josh having his surgery at one of the best hospitals in the world it does ease my fears but still it is surgery on his head he knows quite a bit about hospitals because he also has Neurofibromatosis 1 and he is a very smart lil man when it comes to hospitals but he himself is a lil scared , in alot of ways we are fortunate here in Ontario because we have full coverage of mediacl stuff for the most part anyways , i feel for those parents in the USA WHO have has a child with any disease and have to stress over how to pay for a surgery that will save their childs life , i will also be able to stay in his room for the amount of time he has to stay in the hospital and that i am very grateful for i will have none of the financial worries and i can be right beside him , thank you all so much for your kind words and advice and especially to you Aud , you helped both Josh and i understand what to expect ....will keep updated, mich and josh
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