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thomas jefferson in Philadelphia (Read 12343 times)
macmommy
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thomas jefferson in Philadelphia
Jul 23rd, 2009 at 7:54am
 
Anyone have input?
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calee
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Re: thomas jefferson in Philadelphia
Reply #1 - Jul 30th, 2009 at 8:23am
 
My son Tom 29 years old has Moyamoya.  He was at Thomas Jefferson before we knew and had an angio.  Moyamoya wasn't picked up until 6 or so months later when he had another angio in Geisinger in Danville PA.  In Thomas Jefferson whoever read the angio wasn't familiar with Moyamoya so it wasn't picked up.
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jennd
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Re: thomas jefferson in Philadelphia
Reply #2 - Jul 30th, 2009 at 5:25pm
 
Hi,

I am new to this board but have been a quiet observer since 2006. Reading these posts and knowing that I'm not alone has helped me more than I could ever say.

I had my surgery at Thomas Jefferson University Hospital in 2006 and have only fantastic things to say about the surgeons and their team.  They were very aware of moyamoya when I was admitted through the ER with an alleged aneurysm.  Within 12 hours (while I slept), they ruled out the aneurysm and told me that they thought it was moyamoya. (of course I just heard jumblejumble!!)  They moved swiftly to confirm the diagnosis and a week later I had the surgery.

My angel is Dr P Roc Chen.  He has since moved.  I believe he is now in Houston.  He worked with Dr Rosenwasser and the neuroscience team but he performed my surgery solo.  I highly recommend this hospital and the neuroscience center.

Hope this helps
Smiley
Jenn


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Judy O
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Re: thomas jefferson in Philadelphia
Reply #3 - Aug 20th, 2009 at 4:46pm
 
They discovered my MM at Jeff Neuro, when no one else was able to figure out what caused my headaches.  I didn't have my surgery there (I went with Dr. Scott at CHOB -- I highly recommend him) but have heard good things about Rosenwasser and his team. 

Beware of surgeons there who say you can wait and see though...the doc who did diagnose me told me this (to get a CT every 6 months) and while I'm sure every case is different, MM is progressive and I don't recommend waiting. 

Follow-up has also been recommended at Jeff and also at UPenn -- I use Dr. Messe (although not a surgeon, he is a vascular / stroke specialist) and think he's wonderful.  He really takes the time to explain things -- for example, I didn't know I had a watershed stroke prior to 2005 until my 6-month follow-up back in June!

Best of luck to you or whoever you know is affected.

Judy
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MMhusband
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Re: thomas jefferson in Philadelphia
Reply #4 - Sep 8th, 2010 at 7:48am
 
My wife's surgeons have retired. Her Neurologist is working at Hahnemen Hospital in Philadelphia. He knew what surgery was needed for MM disease, and diagnosed her case while at Th. Jefferson University Hospital.
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Wife had surgery 1986. She is marvelous!
 
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kelly
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Re: thomas jefferson in Philadelphia
Reply #5 - Sep 22nd, 2011 at 9:07pm
 
Does anyone have any recent info on anyone inPhilly?I have sent my scans to stanford, but was wondering if there was anyone closer with expierence.
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MMhusband
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Wife had surgery 1986.
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Re: thomas jefferson in Philadelphia
Reply #6 - Sep 27th, 2011 at 3:03pm
 
My wife's Neurologist at Hahnemann Hospital in Philadelphia is Robert Schwartzman. He is still actively seeing patients, and he is familiar with Moya-Moya. He is a very good physician, sent us to the right surgeon,  and helped my whole family through this ordeal. I am sorry it took me so long to get back to you on this, hope your son is getting treated OK.
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Wife had surgery 1986. She is marvelous!
 
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MMhusband
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Wife had surgery 1986.
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Philadelphia, USA, PA, Pennsylvania
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Re: thomas jefferson in Philadelphia
Reply #7 - Sep 27th, 2011 at 3:08pm
 
I may have misunderstood, is the person with moya-moya you or your son? Send an email if you want to. samspoons1234@yahoo.com
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Wife had surgery 1986. She is marvelous!
 
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MMhusband
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Wife had surgery 1986.
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Philadelphia, USA, PA, Pennsylvania
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Re: thomas jefferson in Philadelphia
Reply #8 - Oct 3rd, 2011 at 8:33pm
 
This is good news. Hope her good fortune continues. My wife was treated very well at Th Jefferson Hoospital for MoyaMoya in 1986. She continues to do well today.
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Wife had surgery 1986. She is marvelous!
 
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MMhusband
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Wife had surgery 1986.
She is marvelous!

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Philadelphia, USA, PA, Pennsylvania
Gender: male
Re: thomas jefferson in Philadelphia
Reply #9 - Oct 11th, 2011 at 8:42am
 
My wife's surgeon retired around the year 2000. Her surgery was done at Jefferson because that is where Dr. Schwartzman sent her. Dr. Schwatrzman now works at Hahnehman (sp?) hospital in Phila. They did a bilateral bypass in 1986 and it worked, continues to work today 25 years later. A stent might not have worked for her, but every case is different. Have you actually spoken with the Neurosurgeon at Abbington? I have found them to be a good source of information about the actual procedures they prefer. Don't delay. Call a Neuropsurgeon today!
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Wife had surgery 1986. She is marvelous!
 
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MamaPhan
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Re: thomas jefferson in Philadelphia
Reply #10 - Oct 12th, 2011 at 2:06pm
 
I've met with Dr. Zager and Dr. Messť at HUP (University of Pennsylvania).

I go in on Monday to discuss the results of the tests Dr. Messť ordered with Dr. Zager, who will perform my surgery. They're a wonderful pair to work with, and my husband and I are both really comfortable with them.
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john douglas
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Re: thomas jefferson in Philadelphia
Reply #11 - Aug 8th, 2012 at 11:50am
 
I am very pleased with the thought and donít feel like adding anything in it.
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« Last Edit: Aug 8th, 2012 at 11:51am by john douglas »  
 
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andrewkarl
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Re: thomas jefferson in Philadelphia
Reply #12 - Aug 11th, 2012 at 2:56am
 
There are also some recent studies going on Moyamoya and doctors are finding some reasonable alternatives to it. Hope in future it may be cured easily and no one would have any big problems!
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Amit
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Re: thomas jefferson in Philadelphia
Reply #13 - Aug 13th, 2012 at 3:21pm
 
Hello,Would like to know the alternatives ?
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