You all will not believe the response I got from Dr. Scott!!
I asked specifically about:
1. Scuba diving
2. Skydiving
3. Wearing a swimming mask to snorkel.
4. Riding fast roller coasters.
I was cringing as I asked this, because Matthew has ridden several. But he hasn't ever had any issues during or after.5. Donating blood
6. Chiropractic adjustments
7. Weightlifting
8. Any other restrictions he could think of that I had not mentioned . . .
Dr. Scott stated that he places
no restrictions on his patients after two years of surgery. Here is his exact response:
Quote:This is a wonderful report about Matthew - I am thrilled to hear how well he is doing.
I don't' restrict my patients in any way after that are more than two years out from surgery. Certainly if he is playing football, I see no reasons for restrictions on any other type of activity. I am not sure that all of the information on the moyamoya site is relevant to each and every patient with the syndrome, especially to those who have had operations and who are doing as well as your son.
Please keep me posted about him from time - or tell Matthew that he should keep me informed with a note every year, OK?
Dr. Scott
I feel the need to
strongly encourage each and every person to consider:
a. their present condition
b. the corrective procedure chosen
c. the effectiveness of that procedure
d.
TO CONSULT WITH THEIR INDIVIDUAL DOCTOR -- EVEN IF IT IS ALSO DR. SCOTT
Obviously, each case is different, as we have discussed at length. Matthew did not have the direct bypass that Stanford performs. He had the procedure that Dr. Scott has perfected, known as a pial synagiosis. It is my understanding that this is an indirect bypass, of sorts.
However, it is nice to know that Matthew will be able to attempt activities that appeal to him. Though Dr. Scott stated that he himself doesn't believe in skydiving.
I agreed. After all, why do people jump out of perfectly functioning airplanes??
Kim