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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › moyamoya and other medical issues??????

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moyamoya and other medical issues?????? (Read 3462 times)

RebeccaKay

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I love YaBB 1G - SP1!

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Richmond, USA, TX, Texas
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moyamoya and other medical issues??????
Jul 14^th, 2011 at 8:49pm

I have a 10 year old daughter named Livie who was diagnosed 4 years ago with moyamoya and has had 3 surgeries for the moyamoya. Now she is having problems with high blood pressure, daily coughing, hives, kidney& lung problems. Does anyone have any issues with this or any other problems that seem to go with moyamoya? I am desprate for help!!!

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Kelley

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I Love MM.com!

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Atlanta, GA
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Re: moyamoya and other medical issues??????
Reply #1 - Jul 15^th, 2011 at 12:37pm

My 3.5 year old had surgery for moyamoya last November. He also has renal artery stenosis (RAS - a narrowing of an artery entering his kidney) which causes high blood pressure. We assume the conditions are related, apparently a certain percentage of moyamoya patients also have RAS. He is on blood pressure meds right now, and will likely have the RAS taken care of via surgery in the future.
I have not heard of the hives, itching, or other problems being related to moyamoya.
Good luck.

Kelley, mom to Gray, dob 10/8/07, moyamoya and renal artery stenosis.

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Becky

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Stroke10/03, Diagnosed6/04,
Unilateral Surgery9/04

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Minneapolis, USA, usa, 303, 84, MN, Minnesota
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Re: moyamoya and other medical issues??????
Reply #2 - Jul 15^th, 2011 at 3:19pm

RebeccaKay,
Welcome to the family. I am sorry to hear you daughter is going though those things. I have unilaterial MM and I am ~7 years post op. I only have evey once and a while migraines that are related directly to my MM. Ohter than that I am very healthy. I hope you fins some answers. I would have your general practicioner and your nurologest talk about all her issues and see if there is a solution.
Good luck, and please keep us posted,
Becky

What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic

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RebeccaKay New Poster Offline I love YaBB 1G - SP1! Posts: 7 Richmond, USA, TX, Texas Gender:	Re: moyamoya and other medical issues?????? Reply #3 - Aug 7^th, 2011 at 4:52pm Thanks for letting me know!
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Franken New Poster Offline I Love MM.com! Posts: 5	Re: moyamoya and other medical issues?????? Reply #4 - Aug 8^th, 2011 at 4:28pm After post-op for me I had hives and itching due to the medication they had me on, it was Phenytoin, also currently on Atenolol for Hypertension which causes dry coughs on occasion.
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