I just wanted to let you know I have the results from the spect scan taken with diamox from monday. It is clear that the right side of my brain doesn’t get enough oxygen. The left side is better and nothing should be done there for now.
Now here in the Academic hospital they have like 2 MMpatients every Month or year (I forgot already, blame it on the MM ) But it’s certain that they have done those bypasssurgeries before. not only for MMpatients but people with other disorders in the brain. Now wether or not to do the surgery depends on how things are going to evolve. They have a patient that had the same complaints as me and who’s been stable for ten years now and they have patienst where the disease progresses really fast. So I just have to see how my body is going to be. do I have lots of complaints? Do they come more ften? Do they last longer or not? I guess I ‘d better make kind of a diary to write these things down. Now if it doesn’t progress too fast, they will do another spect scan in a few months to see how that right half is doing, is it stable or not. THEN they and I will decide what to do next. Now if it gets too worse in a short amount of time, I’ll hva to go see them faster. For now, I have an appointment with the neuro surgeon on februari 10th, just to talk things over. And because they don'’t do these surgeries in an overnight deciesion, then at least I will have seen the surgeon and he will know about my case.
That’s about it, in short.
I asked him if he saw me working with this. Then he asked me if I saw me working. I told him I did my work at home too, so he told me I can try but ONLY part time! And if my body says stop, STOP!!!! No need to make things worse.
I will be glad if I can get back to work, do normal stuff that normal people do. Yeah, like I’m normal