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Please help me to understand... (Read 2637 times)
lovetoni
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Please help me to understand...
Jul 11th, 2012 at 5:03pm
 
To make a long story short, my sister (whom has down syndrome) had a few episodes where she passed out. After going for tests, it was confirmed she had moyamoya. She went for the surgery EDAS about a month ago. Lately she has been a little uncoordinated with her balance so my mother took her for some scans and it showed she as some fluid/blood on the brain. My mother gets very worried and becomes overwhelmed, so I don't really know how serious this really is. Is it common? How serious is this? Please provide some insight, thank you.
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russan1959
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Re: Please help me to understand...
Reply #1 - Jul 12th, 2012 at 11:01am
 
I remember right after my EDAS surgery when I was still in ICU, I had a drain tube coming from the incision. Nothing came out but it was there just in case. I hope the best for your sister.
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Little Luca
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Re: Please help me to understand...
Reply #2 - Aug 1st, 2012 at 5:53am
 
Hi lovetoni

Obviously you have medical professionals looking after your sister who know about moyamoya because they opted for surgery. What do they say about the fluid? Is it a result of the surgery (possibly a pseudomeningocele) or is it further stroke activity (possibly hemorrhagic)?

I'm not a medical professional, but these are the questions I'd be asking the pro's.

Take care
Mark (Luca's Dad)
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1st stroke in September 2008, age 10 months
Bi-lateral mm diagnosis
2nd stroke in November 2008, age 1 year old
Left side surgery in December 2008
13 years on now
Doing just great!
 
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