I would think that if someone made a diagnosis of Moyamoya that they would be scheduling something.  They may talk to you about tests, etc when you do the followup...our doctors told us to remember that MM didn't happen overnight and while it's urgent, our son's case was not emergent.  If they don't talk to you about tests, etc at your follow up, I would start asking and demanding them or you may have to go somewhere else.  Good luck to you and your family!

Well, it has been a long time since I posted, mostly because both my boys are busy with school and normal everyday activities.

I have communicated with Stanford, and this is what we have scheduled for after school gets out.

Mon Jun 10 Meet Dr Steinberg, then have Angiogram
Tues Jun 11 Evening MRI scheduled
Thurs Jun 13 Surgery #1
Thurs Jun 20 Surgery #2 if needed
Thurs Jun 27 Release

We are looking into Angel Flight for transportation right now, if that doesnt go through we might have to make the 3 day drive because of the cost for 2 RT airlines tickets.

Of course we hope the second surgery isnt needed, but we are prepared if thats what is needed.

Good news though, since our initial diagnosis(Oct 2012) and starting the aspirin daily, Benjamin hasn't has any symptoms!!! No Migraines!!!!!

So this is where we are, if anyone has any suggestions for travel please let me know.

Hope everyone is doing ok,
Sincerely Robert Britton-

Fortunately, school is the big occupier of his time, so he really doesnt think that much about it like he did when we just found out. This weekend we are at the State swim meet, I will see if he is interested in talking to her, if so I will text you.

Thanks again for all the support.