Hello everyone,

I had my first STA-bypass and muscle graft on my right side on October 25th by Dr. Meyer at the Mayo Clinic. I had the same procedure done on the left side on Dec 3rd.  My question is how has everyone's follow up been.  I do a cerebral angiogram in one year.  Dr. Meyer said to look at everything and to make sure that the moyamoya has not progressed.  This statement has caused me a lot of anxiety.  I thought after bi-lateral surgeries I would be good to go.  Has anyone else had progression of the disease after bi-lateral surgeries.  Any information or feedback is welcomed.  Thank you in advance for replying and for any information that you can share.

Thanks,

Shelli

So I did read this research article, but not sure that I totally understand it to be honest.  Has anyone had progression of moyamoya after two bypass surgeries?

That does help, a lot, thank you for taking the time to find that and respond!!  I am trying to be positive now that everything works as it should and I can enjoy a nice long life with my family!  Thanks again.  I hope you have a wonderful holiday season:)

Its been almost 9 years since my two sta-mca bypass surgeries. I used to have yearly follow up appointments but after year 5 and everything being great my surgeon dr. steinberg said he didn't want to see me back for at least 7 years. It is normal to have follow up testing done after the procedure to make sure the graft is open and flowing and that there is no further progression. I have not personally heard from anyone about there moyamoya progressing after treatment but we have been warned its possible.

On a lighter note, i don't know if you've seen my recent post entitled Moyamoya care packages. But i will tell you a bit about it just in case. I am a senior in high-school this year and at my school we are required to design and complete a senior project that will benefit a community. I chose to make care packages for people with moyamoya disease, at or near the time of their surgeries.
If it is all right with you, i would love to make you a care package. Nothing is required of you besides a couple minutes and some answers to a few questions to help me personalize the care package. If you are okay with this please let me know, so i can contact you with some more questions.

Also for anyone else reading if you have had your surgery in the last year or are having it anytime soon pleaseeee don't hesitate to say something to me. i would love to make care packages for as many fellow moyamoya patients as possible!