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debster New Poster Offline I Love MM.com! Posts: 5 Gender:	50 yr old adult just told he has moya Moya Jan 15^th, 2013 at 6:13pm Hi my name is Debbie and my fiance has been diagnosed with Moya moya . Plz does any one out there know about this with adults plz . VERY SCARED over here . thank u , Deb
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hillary

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My daughter Holly has
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new braunfels, USA, usa, 279, 285, TX, Texas
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Re: 50 yr old adult just told he has moya Moya
Reply #1 - Jan 15^th, 2013 at 9:12pm

Hi Deb

First of all, glad you found this website. There is a bunch of great information here not to mention great people to talk to.

Do you have any other information from the diagnosis? Where was the diagnosis made? Has he had a stroke? What symptoms does he have? Feel free to ask any questions...there are many wonderful people who will answer.

Looking forward to your reply...keeping you all in my prayers!

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debster

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Re: 50 yr old adult just told he has moya Moya
Reply #2 - Jan 17^th, 2013 at 6:06am

hillary wrote on Jan 15^th, 2013 at 9:12pm:

Hi Deb

First of all, glad you found this website. There is a bunch of great information here not to mention great people to talk to.

Do you have any other information from the diagnosis? Where was the diagnosis made? Has he had a stroke? What symptoms does he have? Feel free to ask any questions...there are many wonderful people who will answer.

Looking forward to your reply...keeping you all in my prayers!

thank for responding . No he has not had a stroke yet he is still in ICU .he had a brain bleed and they stopped it . what happen was he woke up and was very confused . he asked me were the coffee was and then said its in the bedroom . thinking I made it in the bedroom .His short term memory is loss . the hospital is waiting to see if he gets it back . will he ??? The family or the sister has shut me off from him . His brother has been filling me in . I have been with steve on and since I was 15 teen . we have been together this time for 3 yrs living together. I dont want to lose him to his family or death .

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debster

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Re: 50 yr old adult just told he has moya Moya
Reply #3 - Jan 17^th, 2013 at 9:02am

debster wrote on Jan 17^th, 2013 at 6:06am:

hillary wrote on Jan 15^th, 2013 at 9:12pm:

Hi Deb

First of all, glad you found this website. There is a bunch of great information here not to mention great people to talk to.

Do you have any other information from the diagnosis? Where was the diagnosis made? Has he had a stroke? What symptoms does he have? Feel free to ask any questions...there are many wonderful people who will answer.

Looking forward to your reply...keeping you all in my prayers!

thank for responding . No he has not had a stroke yet he is still in ICU .he had a brain bleed and they stopped it . what happen was he woke up and was very confused . he asked me were the coffee was and then said its in the bedroom . thinking I made it in the bedroom .His short term memory is loss . the hospital is waiting to see if he gets it back . will he ??? The family or the sister has shut me off from him . His brother has been filling me in . I have been with steve on and since I was 15 teen . we have been together this time for 3 yrs living together. I dont want to lose him to his family or death .

He was diagnose at st.frances hospital in hartford ct .

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debster

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Re: 50 yr old adult just told he has moya Moya
Reply #4 - Jan 17^th, 2013 at 9:05am

thank for responding . No he has not had a stroke yet he is still in ICU .he had a brain bleed and they stopped it . what happen was he woke up and was very confused . he asked me were the coffee was and then said its in the bedroom . thinking I made it in the bedroom .His short term memory is loss . the hospital is waiting to see if he gets it back . will he ??? The family or the sister has shut me off from him . His brother has been filling me in . I have been with steve on and since I was 15 teen . we have been together this time for 3 yrs living together. I dont want to lose him to his family or death . was diagnose at st. fransic hospital hartford ct

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