I am curious if anyone was ever diagnosed with FMD (artery stenosis) before moyamoya.  While I know my son has moyamoya (they saw the moyamoya vessels), a contact of mine has recently had a daughter diagnosed with FMD.

Her daughter has the same complaints my son had before surgery.  First, a full blown stroke. Second, my son would have "dizzy spells" where he would fall & act like it was hard to walk. My son was 7 at the time. My contact's daughter is 12 and complains of weakness in her legs & feels like she is going to pass out. Anyone else have these complaints?

It seems to me, not being a doctor, that moyamoya could present as FMD before the actual moyamoya vessels have a chance to grow.

Here's the other kicker . . . a LOT of FMD patients have it affecting their renal arteries. That was a shock to me because my son is also considered to have had the moyamoya affect his renal artery. I have read where this isn't unheard of -- just rare. It really got me to thinking . . .

Kimber -- mom to Matthew, 20, 3 strokes at 7 due to moyamoya & single left kidney to renal artery stenosis AND a broken collarbone in TWO places due to snowboarding (with a helmet, of course).