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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Rare Disease Day 28th Feb 2013

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Rare Disease Day 28th Feb 2013 (Read 3369 times)

dmm New Poster Offline I Love MM.com! Posts: 36	Rare Disease Day 28th Feb 2013 Feb 24^th, 2013 at 7:43am Just saw on TV, in Australia, that Feb 28th is International Rare Disease day. Thought it would be good to get Moyamoya recognised. But how? Is there a Moyamoya association?
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srkm5482 MM.com Sponsor Offline I love YaBB 1G - SP1! Posts: 123 Sugar Land, TX Gender:	Re: Rare Disease Day 28th Feb 2013 Reply #1 - Feb 26^th, 2013 at 8:47pm Uhmmmm, I think we're it????
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ladybug3 New Poster Offline I Love MM.com! Posts: 16 Gender:	Re: Rare Disease Day 28th Feb 2013 Reply #2 - Feb 27^th, 2013 at 2:13am Get Stanford on board next year. I saw the list for the organizations in the US. There are a lot of good ones , including universities and research facilities
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Larry New Poster Offline I Love MM.com! Posts: 31 Austintown,Oh Gender:	Re: Rare Disease Day 28th Feb 2013 Reply #3 - Feb 28^th, 2013 at 8:17am Just added same on news page.
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