I first posted here when my then 15 month old Son had just been diagnosed with moyamoya. He is now 13 and a half years.  We have been very lucky with Mitchell, other than executive function, Mitchell's strokes didnt leave too much noticeable damage.  Our Neuro always told us, as Mitchell got older (teens), damage to the frontal lobes would become more evident in the form of anger, aggression, mood swings, behaviour etc.  I am beginning to see all of the above and its breaking my heart.  I KNOW this isnt my Son being defiant, there is a major difference between him having a "regular" teen freak out, and episodes I know he cant really control. Today his older Sister told me shes really worried about him. At times, its like Mitchell is a totally different kid to the one we know. I have shed god knows how many tears these last few days. Has anybody else been through any thing similar? Feeling really alone and helpless right now.

My son was just diagnosed with moyamoya February of this year..He had his surgery March 25the 2013... My son is totally different since he had his surgery!!! My son was a total sweetheart and now he is everything you just described in your son!!! It breaks my heart to see him suffer like this and I cant help !! My heart goes out to you and your son as well as your family.... I will keep you all in my prayers...I pray healing will come soon!!!!