I was diagnosed in 2006 with moyamoya after having stroke. Had bypass surgery august 2006 on left side and January 2007 right side. My surgeon/neurologist released me after last surgery with no follow up angiograms or MRI/MRA (3 hour drive away) Been seeing my regular family doctor every 3-6 months but he is scared to mess with any meds. On cholesterol meds to prevent blockages, blood pressure meds, and daily adult aspirin. I resumed my normal life and nothing has slowed me down. Last week got stung by insect on top of head. Started having a headache 2 days later with incision pain and hurting around temple area. I've been stung before with no symptoms.Got worried demanded family doctor to do mra. They said mra looked good but I  scheduled appointment with neurologist to get checked out. As I said my family dr is scared to do anything... Told me to take Benadryl.  Hopefully they can readjust my meds. Blood pressure still runs high and I feel tired. What has been everybody else's follow up care?  how often do you guys get scans? Does anybody's hands tingle once and a while? Thanks Amanda 

PatricksMom: was the surgery done in Boston  or somewhere else?