Things have gone really fast, my first surgery is Nov 19th, second is Nov 26th, fly home Dec 4th. Only problem now is they say I can't be do this alone. But though i have good friends I have none that can take that amount of time and fly to California. I'll figure something out.
Still dealing with so much anger
at my former neurologist. He left me a year ago with the words "it is a waste of your time and money to do further testing". I had m.s. like symptoms for about 2 years before and though there was white matter damage it wasn't enough for a diagnosis. Which is fine since it wasn't m.s. I didn't seek out other help becaue I foolishly thought I'd let the symptoms progress until I finally got a diagnosis. But fortunately I had a stroke, fortunate because finally he ordered an MR-A, and then a CT Angiogram. He said it was probably moyamoya and it was beyond them and go to a clinic. The first good thing he ever said. But he also tried to take away all hope telling me it was progressive and that there was nothing that could be done and bypasses didn't work. Fortunately, before he said any of this my gp had read the ct results to me and I had googled moyamoya. So I knew ahead of time that bypasses do work. What bothers me is, what about those people who don't google, who accept what he says... and why does he say this? I think it is all malpractice. I don't want to sue. I just want him to not hurt people. Why would anyone act this way?
But I'm wasting energy on anger and bitterness. I'll consider what to do about him later. But this world amazes me, there are good and competent physicians, but I had not encountered this type of ignorance and apathy with a doctor. The onus is on me for not being more aggressive with my own treatment. And I am very very fortunate, the stroke could have been much worse, and I might not have found out about this condition. So, again, back to thanks... I am so very thankful.