Greetings....

We find ourselves with a similar avocation at this point, and I'll suggest this report for the more technical aspects of Moyamoya disease.....       http://jaoa.org/article.aspx?articleid=2093733
It's the Journal of the American Osteopathic Association.  But I am not a doctor or medical professional, I am the father of William, age 42 now, a deaf man who had a stoke in 2013 and was then diagnosed with moyamoya disease.  He's had two operations by Dr. Robert Mericle of HW Neurological Institute in Nashville, Tn, and is challenged at this point by serious, nearly continuous headaches, together with what I believe is called photophobia, but for some reason he still lives in the Sunshine State of Florida.

And here is another resource that should help you:

http://www.moyamoya.com/links.html

Peace

charles coryn