Welcome, Guest. Please Login or Register
Moyamoya.com
 
NEW search box below... Search Moyamoya.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday ListDonate  
 





Page Index Toggle Pages: 1
Send Topic Print
Syndrome vs. Disease (Read 4610 times)
Marcie
New Poster
*
Offline


I Love MM.com!

Posts: 4
Syndrome vs. Disease
Feb 5th, 2016 at 12:21pm
 
Please, I need some help as I am getting conflicting information from the doctors with who. I have consulted.

3 doctors have told me that I have moyamoya syndrome and they have clarified that it is the syndrome and not the disease because I only have it on 1 side.  MY CTA and angiogram reports both suggest moyamoya as well.  But a 3rd neurosurgeon told me that I do not have moyamoya and that saying I have the syndrome is a cop out.  He said that one either has moyamoya disease or does not.  There is no such thing as the syndrome.

Anyone have any feedback?

I have sent my films to dr. Steinberg but I don't know when I will hear back.

Back to top
  
 
IP Logged
 
moyakrp
New Poster
*
Offline


I Love MM.com!

Posts: 11
Re: Syndrome vs. Disease
Reply #1 - Feb 5th, 2016 at 1:12pm
 
Patients with this arteriopathy that occurs either on a familial or idiopathic basis are said to have moyamoya disease. Patients in whom the artery changes occur in association with another process such as sickle cell disease or Down syndrome are said to have moyamoya syndrome.
Back to top
  
 
IP Logged
 
Marcie
New Poster
*
Offline


I Love MM.com!

Posts: 4
Re: Syndrome vs. Disease
Reply #2 - Feb 5th, 2016 at 1:21pm
 
So one can be diagnosed with moyamoya disease even if it's only on one side of the brain?

Thanks for the response.
Back to top
  
 
IP Logged
 
moyakrp
New Poster
*
Offline


I Love MM.com!

Posts: 11
Re: Syndrome vs. Disease
Reply #3 - Feb 9th, 2016 at 12:35pm
 
Hi Yes,  A person can be diagnosed with MoyaMoya with only blockage on one side of the brain.  Hope all works out.
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print



Moyamoya.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.


©2003-2018 Web Vision Enterprises LLC All Rights Reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.

You may view our privacy policy and financial disclosure statement here





Valid RSS Valid XHTML Valid CSS Powered by Perl Source Forge