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Looking for a surgeon (Read 2048 times)
Cerena
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Looking for a surgeon
Jun 27th, 2016 at 12:16am
 
I was diagnosed with Moyamoya last week. I'm from a very small town and no one knows anything about Moyamoya. All I have is what I've read online and I'm not sure how much of it is true. On to the important part I'm on the hunt for a surgeon. My doctor told me to talk to a few to find one I felt comfortable with.. My problem is I have no clue where to start looking!! Who do you recommend?? I'm from the Midwest but willing to travel!
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caretothepeople
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Re: Looking for a surgeon
Reply #1 - Jun 27th, 2016 at 10:47am
 
Hi and welcome! In addition to doing your own research, Ask your doctor who they might recommend. University of Illinois College of Medicine has a neurovascular surgery center. Or the Barrow Neurological Institute in AZ.
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Cerena
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Re: Looking for a surgeon
Reply #2 - Jun 27th, 2016 at 5:56pm
 
Ok I will look into both of them. My doctor doesn't know anything about it 😥..
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willowz
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Re: Looking for a surgeon
Reply #3 - Jul 6th, 2016 at 2:24pm
 
Dr. Douglas Anderson of Loyola Medical Center operated on my sister last fall and again this spring (1st one side then the other). She's been doing well and has no restrictions. Loyola is located in Maywood outside of Chicago, IL.  Have to have a neurologist confirm you have MM and then you can make an appt with a surgeon like Dr. Anderson. Hope you find someone good to help you.
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Rachlin Sisters
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Re: Looking for a surgeon
Reply #4 - Jul 28th, 2016 at 11:29am
 
Dr. Ed Smith works in Boston Children Hospital and is one of the few neurosurgeons that know what hes talking about when it comes to moyamoya.
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corynski
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Re: Looking for a surgeon
Reply #5 - Aug 21st, 2016 at 9:21pm
 
Hello Cerena

Are you anywhere near Nashville, Tn.?   My son William was diagnosed with Moya-Moya disease a few years back, and subsequently had two surgeries done by Dr. Robert Mericle and his excellent staff at the Nashville Neurosurgery Group.  Here is his information:

  https://www.healthgrades.com/physician/dr-robert-mericle-35c5c

I wish you the best.....  Let me know if I can be of any help.  Willy is in Lake Worth, Fl. but comes here to Lancing, Tn (near Knoxville) to see me.  He still suffers from headaches as he is recovering.  It's a tough one......

charles coryn, lancing, tn.
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DawnieLittleBitz
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Re: Looking for a surgeon
Reply #6 - Aug 30th, 2016 at 4:19pm
 
I'm in South Florida, probably not very helpful, but I had used Dr. Jacques Morcos for my STA-MCA Bypass surgeries.  He was informed and everyone told me that Jackson Hospital was the only place I wanted to go with MM.  I wish I'd have found this site before I was diagnosed in April of this year, after having a frontal left love stroke.  Good luck to you.  It's not so scary when you find the right person to ask the information.
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jadleybray
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Re: Looking for a surgeon
Reply #7 - Oct 28th, 2016 at 6:38pm
 
I'm sure there are other's, but the research I found was Boston, Stanford, and OHSU in Portland Oregon.  My wife has both left and right bypass surgeries at OHSU with great success.
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