Greetings...... My name is Charles Coryn, and I'm William Coryn's father..... I've written many times over the years here, but I don't get back often.  I write today regarding the increasing Tinnitus symptoms that he is experiencing.  It has become a terrible distraction and is affecting his sleep also now.  I wish I could be of some help to you.... let me know if I can answer any questions.  William has had progressive problems, mostly from his original Rubella problem at birth.  He had heart surgery at 6 months of age, but the Moyamoya was never discovered. It wasn't diagnosed until he had grown and he was well into his thirties, when he had surgery on both sides of his head about 5 years ago.  Then about a year ago he was hospitalized following a stroke, and had a heart valve replaced, from which he's recovered well, and only within the last month or so has this serious Tinnitus happened.  I'm now searching for info and a specialist doctor in South Florida to treat him.  Willy lives in Lake Worth.  He had his surgeries done by Dr. Mericle in Nashville, Tn.  His recovery was broken by various other medical problems such as excessive acid reflux, and a 'bright lights' problem, I forget the name of it, photosensitive something, and now this.
I had moved to Tn from florida about 12 years ago and have great difficulty helping Willy at this distance away.  He's coming back up for an angiogram next month in Nashville I think.  Moyamoya is so rare that doctors always look confused when we mention it in their offices and in the ER rooms.  And as you likely know it's often difficult to get an interpreter when you need one.   
I regret this website doesn't get more traffic.  There is information on the web, some good info from Japan, but locally there are so few doctors familiar with Moyamoya.
Best of luck to you..... Let me know how you make out......

charley coryn, Lancing, Tn.