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Set up your profile! (Read 3292 times)
DJ
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Wichita, KS
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Set up your profile!
Oct 27th, 2003 at 10:55pm
 
You can easily set up your profile by clicking the "register" link at the top of the board!  I hope some of you do it soon so I have someone to talk with!  Smiley
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Adversity does not build character... it reveals it...  I help my neighbor and my neighbor helps someone else. Life is a wonderful circle!
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rickswife
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ftmadison, usa, 330, 137, IA, Iowa
Re: Set up your profile!
Reply #1 - Oct 29th, 2003 at 11:38pm
 
I just logged on this site, I hope to get some input from others dealing with moyamoya.  My husband just had surgery after being diagnosed in February.  He has a lot of problems he was left with after a stroke in Feb.  The surgery was on the left side only, has anyone had to have a second surgery on the other side.  I only know what I've researched on the internet. His surgery was at U of I hospital I will try to learn to use the site better.  thanks! Smiley Roll Eyes Roll Eyes
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DJ
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Been there, done that...

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Wichita, KS
Gender: male
Re: Set up your profile!
Reply #2 - Oct 30th, 2003 at 3:25am
 
Hi rickswife!

Welcome to the site!  Sorry to hear your husband has residual effects from the stroke.  It's good the folks at the University of Iowa were able to get him diagnosed and get his surgery done.

With my experience of doing research and interacting with people from this site, it seems most people end up having both sides done eventually (if they don't have them done at the same time).

As in my case, I had my right side done in Aug 2001.  About a year later, I started having stroke symptoms on my other side and had my left surgery done in January 2003.

My suggestion would be for your husband pay close attention to his other side and make sure he says something to the doctor if he ever notices any type of symptoms!  It's MUCH BETTER to have the surgery done BEFORE suffering any permanent damage on the other side of his brain.

Have a look around the site by following the links at the top of the page.  There is some good information you might find helpful!

If you have any questions, please don't hesitate to ask.  We've got a good group of folks here who have some pretty good experience with Moyamoya!  Smiley

Again, welcome! 
DJ
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Adversity does not build character... it reveals it...  I help my neighbor and my neighbor helps someone else. Life is a wonderful circle!
WWW 588277454  
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