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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › C'mon moyamoya family

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C'mon moyamoya family (Read 22775 times)

mbodiford

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I love YaBB 1G - SP1!

Posts: 1
staten island, USA

Re: C'mon moyamoya family
Reply #25 - Jan 7^th, 2004 at 11:04pm

Hi I am also new at this computer stuff. Thank you DJ for creating this wonderful web site. I have learned so much from it all ready. Having a 25 year old sister with this disease is hard, but reading everybody's advice is so helpful. Thank you again.
M BodifordMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

[url][/url]Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

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yoki New Poster Offline I love YaBB 1G - SP1! Posts: 19 houston, USA, usa, 293, 288, TX, Texas Gender:	Re: C'mon moyamoya family Reply #26 - Jan 21^st, 2004 at 11:56pm Hi, how are you? I was just diagnosed with MM in 2003. I had bilateral strokes in July. I just wanted to say thanks DJ ; ;
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carol New Poster Offline I love YaBB 1G - SP1! Posts: 24 Houston, usa, 273, 302 Gender:	Re: C'mon moyamoya family Reply #27 - Mar 13^th, 2004 at 9:29pm WOW I see all these people from Houston.We live in Houston too. My daughter had her surgeries in 2000. She was at Hermen down town.Her medicine Dr. is Dr James Grotta and her surgen was Dr Kim Dong.He was the best.Dr Grotta said he has moved to New York. E-mail me any time carols3471@sbcglobal.net
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Sara

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I am 15 years post-op
and loving life!

Posts: 208
Houston, USA, usa, 291, 279, TX, Texas
Gender: female

Re: C'mon moyamoya family
Reply #28 - Mar 16^th, 2004 at 2:35pm

I am from Houston, too. You think there's something in the water down here??? Smiley

I had my surgeries at Texas Children's 14 years ago. Please feel free tocontact me if you want to... I feel like no one knows I am trying to communicate with all of you. I can't talk to my friends or family much about having mm because I think it gets OLD to them. They don't realize how much it still affects my life. I am a bit frustrated...

Sara

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STrantas

MM.com Benefactor

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MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female

Re: C'mon moyamoya family
Reply #29 - Mar 17^th, 2004 at 8:23am

Sara wrote on Mar 16^th, 2004 at 2:35pm:

I can't talk to my friends or family much about having mm because I think it gets OLD to them. They don't realize how much it still affects my life. I am a bit frustrated...

Sara - I hear ya! Having MM is a big part of my life, and will always be. I get the feeling sometimes that my friends and family are sick of hearing about it! -Shari

A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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janicetedd Experienced Poster Offline Sister - Patty w mm Posts: 221 Waterford, MI Gender:	Re: C'mon moyamoya family Reply #30 - Mar 17^th, 2004 at 4:56pm Dear Sara and Shari, I always like to hear about mm'ers. My sister has mm and I cannot get enough infor. We need to get her better. I will always be there for you Janice
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: C'mon moyamoya family Reply #31 - Mar 17^th, 2004 at 10:26pm Thank you, Janice! This web site has been such a blessing!! -Shari
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Sara Experienced Poster Offline I am 15 years post-op and loving life! Posts: 208 Houston, USA, usa, 291, 279, TX, Texas Gender:	Re: C'mon moyamoya family Reply #32 - Mar 18^th, 2004 at 5:32pm Janice and Shari and EVERYONE: Thank you for being here! ; ; ; Sara
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