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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	New Date Nov 26^th, 2003 at 2:08pm Well - if the wait hasn't been bad enough my surgery has been rescheduled to December 29th (originaly Dec. 9th). I get to have a nice New Year's in the hospital. Uggghhh! I'm so frustrated with all of this! I'm sorry...just needed to vent a bit! -Shari
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kalise

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my son lives with moyamoya.

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westernaustralia, Australia, australia, 21, 203, WA, Western_Australia
Gender: female

Re: New Date
Reply #1 - Nov 26^th, 2003 at 9:17pm

hey shari, i can only imagine the frustration u must be feeling. y have they postponed it? you would think u would be on the high priority list, hey? I will be thinking of you on the 29th then, and will make a toast to you on new yrs eve. Stay strong Shari...Got to go for now, we're off to the hospital for Mitchell's 6 monthly mri.
take care......Kalise. Smiley

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STrantas

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MoyaMoya Survivor Since
2003

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Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female

Re: New Date
Reply #2 - Nov 27^th, 2003 at 1:53pm

Thanks Kalise...

They postponed it due to my insurance again. My benefits person at work worked her tail off trying to get my enrollment information in early - explaining to them that I had surgery and I needed my ID numbers and phone numbers to call so that the doctor's office could verify everything and get the proper preauthorizations. Well, the insurance company delayed, of course, and didn't get me my info until yesterday. When I called the doc's office they said they had to schedule a more emergent case on my original date and that my surgery had been rescheduled. To add insult to injury, my father, 2 brothers, and grandparents had all purchased airplane tickets already for the 9th (my mom and I were going to drive). I completely understand that Dr. Scott's office had to do what they needed to do - it's just more waiting for me. But I tried to think positive - at least I'm healthy enough to be able to wait a bit longer, right?!? So now the problem is rescheduling the plane tickets - at $100 per change (per ticket). Hey, Does anyone here work for US Airways???!!! Smiley

-Shari

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A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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pattil647 Junior Poster Offline Mom of Moyamoya Survivor Posts: 70 Langhorne, USA, usa, 484, 119, PA, Pennsylvania Gender:	Re: New Date Reply #3 - Dec 23^rd, 2003 at 2:18pm I'm very sorry to hear about your rescheduled appointment. Look on the bright side -- Dr Scott is a wonderful surgeon -- you'll receive the best treatment once you get in there! Happy Holidays!
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kalise New Poster Offline my son lives with moyamoya. Posts: 36 westernaustralia, Australia, australia, 21, 203, WA, Western_Australia Gender:	Re: New Date Reply #4 - Dec 31^st, 2003 at 12:10am Well Shari...It is new years eve 2nite and as promised I intend to make a toast to u at midnite.....I am sure the surgery went well and look forward to hearing from u very soon.. Take care and god bless Kalise
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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: New Date Reply #5 - Dec 31^st, 2003 at 5:58am Shari, Hope everything went well with your long awaited surgery, I'm sure it did look on the bright side your here for New Years anyway. Can't wait to here from you, you'll be up and around in no time. Nancy
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STrantas

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MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female

Re: New Date
Reply #6 - Jan 2^nd, 2004 at 2:33pm

Greetings everyone! Today is Friday and this the first day that I've been off of my floor to use the computer lab. My first surgery went ok. They had to do a different kind of surgey - from what I'm told it's they technique they use in Japan - because when I was in high school I had TMJ surgey which used the main aretery Dr. Scott hand intended to use. Anyway, the surgery itself wasn't bad but all the medicines they put you on made my stomach weak and difficult to eat. Dr. Scott is going to keep me in the hospital until the next surgery on Monday because I'm currenly on Heparin to stop the multiple TIAs I was having for the first few days after the first surgery. Thank you all for all of your continued prayes and I hope to be able to log back on soon. Bye for now!!

-Sharu

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A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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Mar Ex Member	Re: New Date Reply #7 - Jan 3^rd, 2004 at 3:02am Way to go Shari! Glad to hear the first surgery went well. One down and one more to go. Keep us posted. Continued prayers.
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pupuki New Poster Offline I love Pooh bears! Posts: 11 Honolulu, USA, usa, 371, 343, HI, Hawaii Gender:	Re: New Date Reply #8 - Jan 4^th, 2004 at 11:48am Dear Shari, It's wonderful to hear that your surgery went well. Please keep us posted on how your 2nd surgery fares. (I didn't realize that one could have many TIA's following the surgery.) What a great way to start the new year! God bless! Pooh
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kalise

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my son lives with moyamoya.

Posts: 36
westernaustralia, Australia, australia, 21, 203, WA, Western_Australia
Gender: female

Re: New Date
Reply #9 - Jan 4^th, 2004 at 8:53pm

Hey Shari.....so good to hear from u....am thrilled to bits that ur first surgery was a success......For what it's worth, Mitchell also had numerous tia's after his surgery, I guess some ppl do and some dont......My prayers and thoughts will be with u on Monday for surgery number 2......Stay strong Shari...ur almost there.
Take care and god bless
Kalise and family... Smiley

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DJ YaBB Administrator Offline Been there, done that... Posts: 721 Wichita, KS Gender:	Re: New Date Reply #10 - Jan 6^th, 2004 at 11:50pm Shari, Just thinking about how you are doing. I, too, had several TIA's after both of my surgeries. Mine weren't too bad but certainly scary! Let us know how you are! DJ
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