my name is Christy. last june i had a stroke and learned that i have moyamoya. i have been put on blood thiners but i have had three ischaemic attacks since. my doctor is very good but i am his first moyamoya patient so we are both lost. i am so happy that i have found people who understand what i am feeling. when it comes to moyamoya im still unsure of many things but i now feel i am on the right track. i am so happy to find everyone of you!
babyblue

Hi Christy,

I see from the Location Map you are from Kennesaw, GA.
I found the doctors I am going to on the internet under moyamoya.  Maybe you can find or your doctor can help you find someone in your area or state.  I know my insurance would not cover unless it was someone in my state.  I got lucky I did not have to go to far and so far I am happy with everything.   

Kathy

Hi Christy, 

From what I understand so far, you're on the right track. You're here, and what a great way to start. I just want you to know that we're also here for you and I know just how powerful that can be. Our family was in the same situation as you.  First, we found DJ, an angel, who gave us excellent support and advice, and then Dr. Steinberg. A expert on mm, who gave my niece a chance at a long, long life that she would not have normally had if we listened to our doctors. Through these travels, we met so many wonderful people who helped us through it all. So you see, we've been blessed and you seem to be traveling down that same road, so I wanted you to know that our prayers are with you and that we'd be here for you.

I believe that God’s touches us through the hands of others, and that we hear God’s voice through the words of others, we feel God’s comfort through the support of others, and we know God’s provision through the gift of others.

Hang in there and please keep us posted. 

God bless,
Mar

Hey Christy,
I'm so glad you're going to Stanford!!  They are a wonderful staff there and I know that you'll be in the best hands. If you or your Mom would need anything or info, my family has been through it and may be able to help with even the littlest thing. Please feel free to contact us. They flew from the east coast to the west coast as well and it was well worth it to get the best doctor in the world for mm. We just love him!!
As far as being scared...bless your heart, that's natural, but as far as the surgery goes, if you read the past posts, you'll see that people have said that their routine dental work was far worse, believe it or not. I'm not making light of it, I just want to reasssure you.

Hang in there 

Mar

Hi Diane,
Welcome to our family! So glad to meet you. You don't have to feel helpless anymore Diane...You've certainly did the best thing for your daughter. Many will attest to the fact that, unfortunately they did not have the opportunity to have one of the best mm specialist in the country as you now have. you should feel comforted in knowing you're doing the best for your precious babygirl.
Thank you for your prayers and kind words.

Mar