DJ
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Hi all!
I was able to pick up a copy of the magazine yesterday. I can see where you're coming from about the medical reference imperfections in the article, but I definately don't agree that it would have been better not to have anything written about moyamoya!
If the article were written in a medical journal or something a little bit more "official", you might have a valid point, but it's not.
Fact is, 99.99999% of the people who run across the article will think it's an incredible story and will have no clue that some of the technical references were made more "dramatic" in order to try and help sell magazines.
I think it's absolutely wonderful that the word "moyamoya" has made it into a national magazine article! I'm sure the word, in itself, will stick in people's minds more than the "technical" imperfections that all of us who suffer have sinced researched and found to be incorrect. Most people can relate to the words 'aneurysm' and 'mass'. They can't relate to 'moyamoya' or 'puff of smoke'.
I've also spoken to the woman, Elizabeth Holzemer, who wrote and submitted the article to Woman's World. She wanted to assure everyone here that she throughly researched Moyamoya and wrote the 'correct medical information' into the article, however, editor's opted for the "more dramitic" wording. Remember, for the editor's, it's all about selling magazines!
On a personal note, Elizabeth has been through A LOT herself and has done some AWESOME work for a group of her own! She has created an online family for herself and other mother's who've had meningiomas. I encourage you to stop by and read about HER FAMILY at http://www.meningiomamommas.org/history.asp
She, and her online family have also had to deal with a lot of the same things us mm'ers have had to work through when you hear the words "brain surgery".
DJ
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