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babyblue

Senior Poster

Offline

Diagnosed 2003

Posts: 306
kennesaw, USA, usa, 417, 219, GA, Georgia
Gender: female

surgery scheduled
Mar 24^th, 2004 at 10:32pm

hey everyone its christy.
found out today that i am headed out to stanford in two weeks for surgery. they will do the left side april 14th and the right side april 21st. dr. steinberg said i have a bad case of mm but my other blood vessels look real good so we are getting it taken care of asap. i was shocked how soon he wanted to have it done but atleast i dont have to continue worring about it. two weeks ago i was lost and had no idea what might happen to me and now i have found hope. i found this wonderful group of friends and now i will soon have surgery. thank you to everyone for your help. i will be in california for three weeks but until then i will be her to chat and will let you know everything when i return. again thank you.

christy

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"Life is not a desination, but a journey!"

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janicetedd Experienced Poster Offline Sister - Patty w mm Posts: 221 Waterford, MI Gender:	Re: surgery scheduled Reply #1 - Mar 25^th, 2004 at 5:06am Hi Christy Great news. We will all be praying for you. My sister Patty had the surgeries at Mayo Clinic in Rochester 12/02, and 01/03. While there we used the library with computers to send out daily emails on her progress. She is such a treasure. Hope to see you and your mom in August Janice
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gilberttl Junior Poster Offline I love YaBB 1G - SP1! Posts: 75 Lewisville, USA, usa, 285, 247, TX, Texas Gender:	Re: surgery scheduled Reply #2 - Mar 25^th, 2004 at 7:59am Christy: I just got back from Stanford, too. I think you'll be in great hands. Good luck! You'll be in my prayers. Tricia ;
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Mar

Ex Member

Re: surgery scheduled
Reply #3 - Mar 25^th, 2004 at 10:47am

Fantastic news!! I'm so confident that you're in the best hands in the world! Isn't it astounding Christy, how so many doctors out there know so little about moyamoya? Your doctor said not to believe all you read and had you waiting on blood thinners. You are a perfect example where a second opinion with an experienced mm expert may have saved your life. Kudos to DJ and this wonderful network of information and support. Smiley

We'll be there with you in spirit and prayers all the way. Smiley

Mar

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PatM Experienced Poster Offline Posts: 229 Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey Gender:	Re: surgery scheduled Reply #4 - Mar 26^th, 2004 at 4:31pm Hi Christy-----I know you had very little notice about the surgery but maybe that's a good thing----it sounds like you have no choice but you are in good hands----we are praying for you every day and look forward to seeing you in August......Be well. God Bless you. You will be ok...PatM ;
Back to top	"A life is not important except in the impact it has on other lives."...Jackie Robinson&&Worry looks around....Faith looks up...... IP Logged

Nancy_N.

Old-Time Poster

Offline

My daughter Mandy Has
Moyamoya

Posts: 664
Jasper, USA, usa, 436, 230, GA, Georgia
Gender: female

Re: surgery scheduled
Reply #5 - Mar 27^th, 2004 at 8:36pm

Babyblue,
My daughter Mandy had surgery in Feb. and March 2003 by Dr. Steinberg she is 20. We had a very pleasent experience he is an exceptional surgeon you will not be disappointed he and Theresa are the best. You are the first person other than Mandy that has been on here that doesn't really fit the age bracket for this disease they say 0 to 10 then 40 and over. We wish you luck and speedy recovery which I know you'll have because Mandy did and she went in in much, much, worse shape than you. Our thoughts and prayers are with you. D.J. is the best support system you could have. Keep us posted.
Nancy and Mandy Smiley

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babyblue

Senior Poster

Offline

Diagnosed 2003

Posts: 306
kennesaw, USA, usa, 417, 219, GA, Georgia
Gender: female

Re: surgery scheduled
Reply #6 - Mar 27^th, 2004 at 11:19pm

thank you everyone for your thoughts and prayers. not that i want to have surgery but i am very excited that i have been givin the chance to fix my mm and especially before any real damage has been done. all of you have helped me so much, i am not scared of surgery now and cant wait to let everyone know how it went. you all are so great, my thoughts are with you all.

christy

p.s. i think everyone can agree that dj is the best!!!

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« Last Edit: Mar 27^th, 2004 at 11:20pm by babyblue »

"Life is not a desination, but a journey!"

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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: surgery scheduled Reply #7 - Mar 28^th, 2004 at 9:31am Nancy_N. wrote on Mar 27^th, 2004 at 8:36pm: You are the first person other than Mandy that has been on here that doesn't really fit the age bracket for this disease they say 0 to 10 then 40 and over. Nancy - I don't fit the age bracket either - I was diagnosed when I was 28. -Shari
Back to top	A smile is contagious...start an epidemic! Dr. Scott did my surgeries - 12/29/03 and 1/5/04 IP Logged

Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: surgery scheduled Reply #8 - Mar 28^th, 2004 at 12:59pm Shari, There's 3 of you then its definately not the norm for age your from philly too we were at one point then from right outside philly the first suburbs, thats kind of strange huh! Nancy
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janicetedd Experienced Poster Offline Sister - Patty w mm Posts: 221 Waterford, MI Gender:	Re: surgery scheduled Reply #9 - Apr 5^th, 2004 at 8:25pm Hi Christy. I know that you should be leaving soon --we are all pulling for you. You are in my prayers. Keep us posted. I know your mom will. Janice
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