Melly -

I did have a stroke before hand (albeit a mild stroke, thank God).  When I had my MRI my doc confirmed that I had a silent stroke as well - so that's 2 strokes.  My third stroke - a bit more debliltating - happend when I was in the hospital having my 2nd surgery.

-Shari

Melly,
               My daughter Mandy had many strokes before her diagnosis and were very devistating she has been rehabing for 1and a half years but is getting and doing much better.
                                    Nancy

Hi,
My son Tyler had a stroke before diagnosis. It left him unable to use his left arm from the shoulder down. He has recovered about 70% use in the 9 months since surgery.
Rena

After about 12 years of horrible headaches and several MRI's and different opinions of migraine headaches, tension headaches, etc, I at 39  years old had a stroke  on 1/25/04.  So I did have a stroke before being diagnosed with moyamoya disease.  But I also had to be transferred from Monroe, Louisiana to Dallas, Texas to be diagnosed because the doctors here knew that I had a stroke, and saw something funny on my MRI, but either thought it was MS or a brain tumor and sent me there for a second opinion because they didn't know that it was.  (They didn't know what moyamoya was).  The doctors there did a arteriogram and within hours knew what I had.

Hi Laura,

My sister was 41 when she was diagnosed with mm.  Are you a candidate for the surgery?

Janice

alice_moya wrote on Apr 15^th, 2004 at 4:15pm:


Hi Alice -

A silent stroke is one that you wouldn't have even known you were having - you wouldn't have any symptoms.  If you ask me it is very scary to not know this is happening with out any symptoms.

-Shari

Kathleen had strokes before diagnosis.At the time of diagnosis and initial MRI they she had had a stroke and they saw at least 2 "silent" ones. She then had another  stroke 2 months later , a stroke on the way to Boston for her surgery, and then 4 days after her first surgery(on the right side) she had a major strroke on the right side of the brain and a showering of strokes on the left side of her brain. 2 days later she had surgery on the left side. She has been stroke free for 2 yrs. now. she lost almost eveything she had been able to do walk, talk ,sit ,up.she is now wlaking talking,in Kindergarden and even reading at grade level.My daughter was also born iwth Down Syndrome.I have read that this is a much higher risk group of children for Moyamoya.Kahtleen's first stroke just looked like a regression fromlack of therapies over a vacation.she looked a little wobbly on her feet.It finally progressed to the point that she was wlaking into the wall qand didn't even want to stand up.that is when went to the ER.
Mary Grace

My daughter had one stroke that lasted three days.  We believe she suffered more, but we are not for sure.

so far, my daughter has not had a stroke, none have showed on the MRI, so we are hoping to keep it that way for a much longer time....can't wait till the surgeries are done.

hillary

FYI

My husband had multiple stoke which resulted in a mm diagnosis. 

Jane

My family member had a stroke in his mid-twenties, but was not diagnosed with MM until his early 60's when he started  having TIA's. 
aka

My father had at least two strokes, possibly a third within about a month and a half timeframe.  Then he was diagnosed. 
His strokes had very definite effects afterward but he didn't know he was having a stroke while it was happening.  The first time it took him 2 weeks to finally decide the symptoms were worrisome enough to go to the hospital.  Is this was is called a silent stroke?  You don't know that something happened untill the effects are apparent?