I wasn't sure how well I would be recieved here.  I am so overwhelmed by the response. 
I have read through many of the guestbook entries, and was just amazed at how many people have undergone successful surgeries. In my book successful means you have a good quality of life.  I won't lie, I am extremely angry at the physicans who missed this diagnosis for so very long.  I just hope through the legal system I can get some justice for Angel Arianna.  I like that.  I so wish she was still with us.  I know all here are very special, but I do have a bias opinion of Arianna.  She was so very special.  The whole ICU and Surgical staff at Boston just fell in love with her, and most never even go to speak with her.  I so much want to come to NJ for the get together, but even if I can't, I know Arianna will be there.  I know in my heart she speaks to me to help spread as much information as possible.  I don't know how well I will do at spreading hope. 
So if any of you are getting ready for surgery, listen for a giggle and a spearmint odor.  That seems to be Arianna's calling card.  I don't know if anyone believes in this or not, but I have heard from others that they have experienced this.  One person was in the ICU with us in Boston.  I believe.
Best wishes to all of you and to DJ, thanks so very much for a place like this.  I will be informing the doctors around here of this site so they can come and read and maybe get some first had knowledge of this affliction.
Thanks again,
Tammy

Hi Tammy----As I told you in my private e-mail to you, if you need my help regarding medical malpractice lawyers, I can contact my law school pal (Who happens to be one of the best med mal attorneys in New Jersey) to find a recommendation for you in your state.......As you will see from my story on the guest book, I also suffered horribly as a result of a misdiagnosis.....but I am still alive to tell my story, thank God.  One of the problems would  be that moyamoya is such a rare disease that misdiagnosis is probably more common than not.  Frankly, although I am a lawyer, as I told you, I am normally not in favor of filing medical malpractice cases in all but the most extreme of circumstances.  Although the death of Arianna is certainly extreme, due to the rareness of moyamoya and the difficulty with diagnoses, it may be very difficult to find an expert who would testify (one neurologist vs. another neurologist).  What we all need to do, in my opinion, is focus on educating the neurologists and neurosurgeons about this rare and potentially devastating disease.....that is one of the reasons that I am starting the Moyamoya foundation.......I'm glad that you like the name Angel Arianna---it was the first thing that popped into my mind---like I said, we are all here for you.....call or e-mail anytime..... PatM....Remember that God is with you always and so is your special Angel Arianna----she remains alive in your heart and mind and your beautiful memories of her....Good night and God Bless.