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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Angel Arianna:Take One

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Angel Arianna:Take One (Read 4639 times)

ariannasmommy

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^i^Angel Arianna^i^

Posts: 178
Herrin, USA, usa, 361, 171, IL, Illinois
Gender: female

Angel Arianna:Take One
May 4^th, 2004 at 12:36pm

Okay, I am sure this is just the first in a series of post on Angel Arianna.
If I knew how to get a picture up here I would, but let me just say that even tho' to me she was beautiful, imagine a female Dopey from the seven dwarves. That is kinda what she looked like when she smiled really big. As I had said previously, she was addicted to spearmint gum, not just any gum. It had to be the Extra brand. Always bumming coins. When I find her stash, I'll be rich. Her favorite song was Lady Marmalade. She came by that when I was practicing for a karaoke contest and she became my back up singer. She never met a stranger. If you came within 5 feet of her you were one of her best friends and if you had a cookie or gum, you were her best friend for the day. I try not to think of what she didn't get to do, because she did a lot. She got to go to the beach and go on a boat out into the ocean. She rode a horse last summer. She got to pet Shamu and go camping. She was learning to swim last summer. She did a lot of things. She absolutely loved school. The week before her surgery, she did not want to go. I think she knew she was leaving. She stayed with us and would climb in bed and say "Mommy, I love you so much". She went to school one day that week and gave everybody hugs and told them bye. I think she was ready. She worked so hard to learn the things she knew. She was and is pure sunshine. When I would come home from work, she would just run up to me and grab my legs and holler "yea, mommy's home". I really miss that.
Well, that is all for this episode of Angel Arianna.
Stay tuned when next time we discuss the Onryanna as she was also known. The things this child could think up to do was incredible.
Till next time.
Tammy

Tammy Carter

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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: Angel Arianna:Take One Reply #1 - May 4^th, 2004 at 1:28pm Tammy, Thank you so much.What a gift to us to share your beautiful Angel.I write this through my tears. I look forward to hearing more about Angel Arianna.You have helped me to never forget how fortunate we are for every day that Kahtleen is here and healthy. ((((HUGS)))) mary Grace
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janicetedd Experienced Poster Offline Sister - Patty w mm Posts: 221 Waterford, MI Gender:	Re: Angel Arianna:Take One Reply #2 - May 4^th, 2004 at 1:59pm Tammy. What a great story. We will always be here for you and I never tire of reading about Angel Arianna. God Bless you. It is exciting to know that she is heading UP our cause. Janice
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Sara Experienced Poster Offline I am 15 years post-op and loving life! Posts: 208 Houston, USA, usa, 291, 279, TX, Texas Gender:	Re: Angel Arianna:Take One Reply #3 - May 4^th, 2004 at 4:11pm Tammy: I can't imagine lossing a child. I hate to think about it. I know that she is sunshine now. I will think of you all the time. The more stories the better. We all are here for you! Sara
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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: Angel Arianna:Take One Reply #4 - May 4^th, 2004 at 5:06pm Tammy, I too will never tire of the story's of angel Arianna, she sounds like she was a very special child. My heart is with you I know how you feel. Till next time. Nancy
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PatM

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Posts: 229
Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey
Gender: female

Re: Angel Arianna:Take One
Reply #5 - May 5^th, 2004 at 6:08am

Tammy---I am speechless---and just bawling my eyes out--I mean sobbing uncontrollably Cry

-----what a beautiful story, yet heartbreaking...my daughter, Jillian, is just about to turn 5 and she is, together with my other daughters, the absolute sunshine of my days and nights. My heart is breaking for you....WE MUST DO ALL WE CAN TO SEE THAT THIS DOES NOT HAPPEN TO EVEN ONE MORE CHILD. That's why DJ started this website and that's why I am starting "The Moyamoya Foundation---Helping Hands, Caring Hearts" I was just e-mailing my contact at the IRS and our attorney, Tom Wrobel, in CAlifornia earlier this morning. You will all love him.....and I am confident that at least 1 neurosurgeon, 1 pediatric neurosurgeon, 2 neurologists, 1 neuropsychologist, and 2 prominent researchers of neurological disorders will agree to sit on the Board. In addition to DJ, myslef, Tom Gallucci, my accountant, and my personal financial advisor. ALso, know that I have a lunch meeting set up for WEd May 11th with the Head of the Trust Division of Merrill Lynch, which company has the largest international charitable organization and foundation department......so, things are moving along behind the scenes here in NJ and out in California with our attorney.....will keep all of you posted.

From this month's edition of Alive Now, article entitled Fire by Night, by Laura Huff Hileman (of Nashville, TN)

Behold
Fear not
I am about to do a new thing:
now it springs forth, do you not perceive it?
The truth will make you free.
Lo, I am with you always.
Comprehend...the breadth and length and
height and depth, and know the love of Christ
that surpasses knowledge so that you may be filled
with all the fullness of God.

Peace, faith, hope and love to all of you. Pat

"A life is not important except in the impact it has on other lives."...Jackie Robinson&&Worry looks around....Faith looks up......

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Rena Senior Poster Offline Hi, My son Tyler was diagnosed with MM in 2003 Posts: 467 , Colorado, USA Gender:	Re: Angel Arianna:Take One Reply #6 - May 5^th, 2004 at 10:01am Please keep the Angel Arianna stories coming. She sounds wonderful. I can't express how sorry I am for your loss.
Back to top	I've learned to never underestimate the impossible. -Blake Sheldon-&&There are no failures, just options tried. -Thomas Edison-&& IP Logged

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