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Magnetic Ribbons for Moyamoya (Read 5418 times)
Nancy_N.
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My daughter Mandy Has
Moyamoya

Posts: 664
Jasper, USA, usa, 436, 230, GA, Georgia
Gender: female
Re: Magnetic Ribbons for Moyamoya
Reply #25 - Aug 18th, 2004 at 1:46pm
 
I'm inclined to agree with Mar that we should make sure the website is not in any jepordy and I never really thought of it but that is an excellent point alot of people have not been able to go to where the best is because of NO insurance not just insurance that won't send them there. There's a new member that has no insurance and has to settle for where she is locally and I'm sure they're not MM specialist as we know they're far and few between. If it means no surgery or a chance of a major stroke I totally see why they're going, I would do the same, you have to take action fast as we all know its not a disease to wait on. I'm sure no one could possibly be offended by the magnet idea I think its great, but I guess just go through all the proper channels first. Just thought I'd give my opinion.
                                Nancy Roll Eyes
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carol
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I love YaBB 1G - SP1!

Posts: 24
Houston, usa, 273, 302
Gender: female
Re: Magnetic Ribbons for Moyamoya/Annica
Reply #26 - Nov 2nd, 2004 at 11:35pm
 
My daughter was a lot like yours.I thought she would get on here and talk to other people but I think she just wanted it to go away and she didn't want to think about it.She was 18 at the time.She is almost 23 now and still doesn't talk about it.Thank goodness she hasn't had any problems since her surgeries.
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Carol
 
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dinferois
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I Love MM.com!

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Re: Magnetic Ribbons for Moyamoya
Reply #27 - Jul 23rd, 2020 at 6:28am
 
I am willing to place an order soon if I can get more ordered.  I know I want about 10 too, some of our friends are going to buy some and put on their cars as well.

Do you all like the color's I picked, and the wording?


I will email everyone back with my address of where to send the money, I just need to figure out the cost on mailing them all....we could include that in the 5.00 price and then just use whatever is left of that to go to Connie and then to the foundation.
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