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moyamoya (Read 2688 times)
Skay
Junior Poster
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I love YaBB 1G - SP1!

Posts: 87
Evansdale, USA, usa, 323, 119, IA, Iowa
Gender: female
moyamoya
Jan 26th, 2007 at 10:00pm
 
I am from Iowa and would like to hear from anyone who is living in Iowa with moyamoya.
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hotdog  
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spotonyx
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my email is: oda69@netscape.
net

Posts: 4
Minneapolis, USA, usa, 300, 74, MN, Minnesota
Gender: female
Re: moyamoya
Reply #1 - Oct 19th, 2007 at 8:16pm
 
Hi Skay,
You wrote to me recently, I am from minneapolis. The problem is i cant sign on to my account because there is a problem with it. So I made an account under my mom. This is spottyoda.. For some reason i did receive your e-mail at oda69@netscape.net. I was diagnosed about 3 years ago after having my first stroke about 4 years ago. I just recently logged onto this site because I have refused to look online about moya moya all this time because Ive been too scared. I figured the less I know the less freaked out I am. I guess coming to this website is the first step ive made for any kind of contact about the disease. I am a 35 year old white female, they say I am not a typical case, but such a rare disease I dont think there are typical cases.

amy (spottyoda)
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Skay
Junior Poster
**
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I love YaBB 1G - SP1!

Posts: 87
Evansdale, USA, usa, 323, 119, IA, Iowa
Gender: female
Re: moyamoya
Reply #2 - Oct 20th, 2007 at 12:00am
 
Hi Amy,  I didn't want to hear I had mm either. When I was diagnosed I could not belive it. I was 51 when I was told. Like you said it hits anyone at any age. I had my surgery at the University of Iowa. They know about MM. I could not have better care. Sorry about the spelling. Don't wait to do something about this. I have been stroke free for four years.
Take care, Skay
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