Hi Michelle,
What would you like to know? Info about GOSH, Mr Thompson, Moyamoya or just general??
What I will say is when we was first told Grant suffered from Moyamoya, its like having your world fall apart around you and your heart ripped out!
It is a very worrying time initially, and you cant help but think or try to recall "what did I do, was it something we (parents) done to cause this", as it is supposed to be a genetic disorder. No one can comprehend the pain or worry you go through, as it is such a rare condition in the UK.
If you would like any info, please feel free to ask or you can even contact me via MSN so you could chat 'live' if you wish to any of the family. (My MSN Messenger address is the same as my registered email address on here.)
Finally, rest assured, there is help out there and on here also. Although like I said earlier, its a rare condition, the a 'family' of very helpful and knowledgable people still left in this country.
Kindest regards to you and all your family.
Mark (Dad)