Hi, all!
My mind is constantly considering possible causes of Moyamoya Disease. I suspect there may be multiple causes. Some have gene/genes that seem to be associated with the disease, but others don't. There is literature linking exposure to intense radiation of the brain, such as for treatment of a brain tumor, can cause Moyamoya Syndrome. I've never had a tumor irradiated, but many years ago, maybe fifteen or so, my dentist did a panorex xray of my skull. A quick web search indicates that the radiation exposure is limited, but I'm wondering about that. Could there be a link between a panore xray and Moyamoya in adults? Have any of you with Moyamoya disease had this type of dental ray?

Here's a link to a website with information about panorex;
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

It states:
"The axis of rotation in a modern panoramic x-ray machine is constantly moving, In fact, a panoramic radiograph is one of the lowest dose dental examination techniques available ."


"... the organ doses from digital panoramic radiography are: thyroid: 10.4-52.2 µGy; skin: 0.1-4.1 µGy; bone marrow: 4.6-12.1 µGy. To convert to mrem, or more actually to mrad, divide each dose in µGy by 10."


What do you think? Sure would be great if others could be saved from this horrendous Moyamoya experience.
Kim

Kim~ And anyone else who wonders......

Interesting topic. Brings up lots of questions we all probably have about when, where, and how we affected with mm. I honor your research and quest.

Here's my 2 cents which really just adds to the data.

I have been partially blind since birth --  1950.
was the rod and cone structure anomaly in my eye it due to the lack of vascular system that was later discovered by Steinberg and Dr. Lawton (SF) in 2000?  Early on, Steinberg commented that he couldn't make a connection...but that was long ago and maybe more is known now. Actually my lack of vascular system was 'accidentally' discovered in the late 1980's during another scan...but there was no moyamoya knowledge for the most part so it went down as just another odd thing about Linda. until the strokes....1999.

I had tons of old time x-rays in the 1950's because my mother sensed that something was wrong with my eye and/or brain. or both. A good eye doctor straightened that out when I was about 5.
My mom also refused to let dentists do x rays every year, as I'd already been x rayed so much.

Who's to know if I did or didn't have a vascular system in/on my left side back then. I tend to think not. If so, where did it go? When" How? Are there traces that it leaves? My scan showed very little happening on that side.

Please keep this quest open.
I'l interested and also want to know.

Linda (LA)

Well, to add Luca's two cents worth, at the ripe old age of 1 she certainly had not had any x-ray in her life. Due to how extensive the moyamoya was in her, they are summising that she's had it from a very young age i.e. her first month or two or even pre-birth.

My husband just had an MCA bypass on the 13th, then on the 21st had a nasty seizure.  He was doing so well.  I have read that mm is common in patients with neurofibramatosis.  My husband has had this for as long as he can remember.  His mother has nf also but never had any of the problems or complications.  No family connection of MM or NF.

I remember having that x-ray done, the kind that you stand for and it goes around the head at the dentist's office. I only had it once and it [i]was[i] before I was diagnosed. I just can't help but wonder if a one time deal like that could cause moyamoya espcially when there are so many others with it that didn't have it. It makes you wonder just how many causes there can be for moyamoya. It really is interesting though. Sure wish someone would figure it out already!