Thanks for the link Kim. I'm going over there to have look now.

Mark (Luca's Dad)

Hi Mark,
I'm glad you passed your suggestions along to Nadia. She is a neurosurgical fellow who has been working with Dr. Steinberg at Stanford Medical Center for the past few years. Prior to that she had been practicing neurosurgery in Zurich, Switzerland. So you deduced correctly, she's not from the US, but her English definitely has an American accent.
In Zurich, she worked with another much respected Moyamoya expert from Japan. I'm sorry, I don't remember his name, but he trained with the Japanese fellow who first identified Moyamoya in 1956.
In Zurich they do a second bypass surgery called STA/ACA which brings more flow to the front part of the brain. She believes the brains of developing young children need this extra flow. She spoke about it at the Symposium on Saturday.
Nadia plans to return to Zurich and will be hosting the Second International Moyamoya Angiopathy Symposium there during the Fall of 2010.
I hope you're able to find the two books. They're beautifully done. Nadia felt so strongly that children need to understand  about the surgery and what to expect, that she created them using her own funds. She's a pretty terrific person.
Kim

Nadia is a pretty terrific person and Dr. I still tear up when i think of her. She was at my side when my daughter had her surgeries and took the time to sit and explain things to me. Things didnt go so well with my daughters surgeries and I was there at the hosp. by myself. I still think she was my angel! I don't know how i would have gotten through it without her. She is very compassionate.
                            Christie

Mark,

You have every reason and right to ask what you asked, and I think it's important that you shared your thoughts with Dr. Khan.  I'm sure your comments will be very appreciated by her.

Adding my two cents to what Kim and Christie said about her, she's an absolutely amazing doctor and person.  Those of us in the moyamoya world are fortunate to have her on our side, and I think we'll see some incredible things from her in the future.

By the way, I love seeing your "Luca updates"!  They bring many smiles to my days, and I find myself looking forward to seeing what you've written about her.  What a little trooper she is, and she's certainly blessed to have you as her father.

Warmly,
Jill

OMG, this is OUTSTANDING!!!!! AMAZING information. THANK YOU so much for posting it!!!!!

I think your links should be posted in a special thread, so people will have better access to it. It's unbelievable how far moyamoya research has come since I've been here. I've never seen anything like it.

Thank you again for sharing it!!!!

Mar

sides one technical issue I had with the website (pictures too small), my other issue was with the Dr's identity and credentials. If we are to take medical advise from moyamoya.net, then Dr Nadia Khan needs to give us details of his/her experience and credentials.