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Father of a 5 year old with Moyamoya (Read 1733 times)
chordt2178
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Father of a 5 year old with Moyamoya
Feb 28th, 2020 at 10:56pm
 
I am look to connect with parents of young children who have Moyamoya to share experiences/knowledge about the disease and there journey. We live in New York

Thanks
Chris
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Little Luca
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Somerset West, South Africa
Gender: female
Re: Father of a 5 year old with Moyamoya
Reply #1 - Jun 9th, 2020 at 4:08pm
 
Hi there Chris

My daughter, Luca, stroked and was diagnosed at 10 months. She was operated on at 1 year old. She is now 12 years old and just an incredible girl. Inspirational. We live just outside Cape Town, South Africa

How are you doing?

Cheers
Mark

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1st stroke in September 2008, age 10 months
Bi-lateral mm diagnosis
2nd stroke in November 2008, age 1 year old
Left side surgery in December 2008
13 years on now
Doing just great!
 
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