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Any one knowing of MM specialists in Toronto (Read 10694 times)
joshandmom9770
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Any one knowing of MM specialists in Toronto
Jul 17th, 2009 at 11:29pm
 
My son is newly diagonised with MM SURGERY IS NEXT MONTH , I HAVE ASKED THE nEUROSURGEON ABOUT HIS EXPERIENCE WITH mm AND HE DOES HAVE EXPERIENCE , and with the surgery another specialist  from another hospital will be in the or with him , just wondering if their is any one on here whose child has had surgery at The Hospital for Sick Kids in Toronoto , Ont , any feed back would be greatly appreciated . Thanks
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Danielle
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Re: Any one knowing of MM specialists in Toronto
Reply #1 - Jul 19th, 2009 at 8:37pm
 
How old is your son? My daughter had her 2 surgeries in Detroit Michigan by Dr. Sood. He is not a specialist in MM disease but is a specialist with the in direct bypass surgery. He has performed the in direct bypass on many children that needed it due to sickle cell anemia or other causes NOT MM. He has only seen a handful of cases of MM. He works for the Children's Hospital of Michigan in Detroit. I know there is a bridge and tunnel close to the hospital to get over to Windsor, Canada. I'm not sure how far that is from Toronto. Ever since I joined this board I have realized that we should have seen a MM specialist. My daughters surgery turned out great but we were lucky. Under the circumstance we were in it was an emergency and had to have the surgery write away. If we had more time to research we would have taken her to Boston or Stanford. Dr. Sood did a fantastic job and I highly recommend him. The reason I wish we would have had it done by a specialist is because now a year and a half post op we do not get all the answers we are looking for. I have learner more on this site than I have from the surgeon. Good luck with your decision. Danielle
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« Last Edit: Jul 19th, 2009 at 9:09pm by Danielle »  

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joshandmom9770
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Re: Any one knowing of MM specialists in Toronto
Reply #2 - Jul 22nd, 2009 at 7:06am
 
thank you so much for the info , as a parent we want the best for our kids , all of you have been most helpful , and as i am not that puter literate i have been having a few problems responding to some of the posts , i will get it figured out , lol , tring to keep Josh busy and have some fun b4 this summer before he has to have his surgery right now the hardedt part is waiting for a date all i know is that it is in August prolly towards the end of August, when the 2 Drs can get a date together , and being in Toronto and Josh having his surgery at one of the best hospitals in the world it does ease my fears but still it is surgery on his head he knows quite a bit about hospitals because he also has Neurofibromatosis 1 and he is a very smart lil man when it comes to hospitals but he himself is a lil scared , in alot of ways we are fortunate here in Ontario because we have full coverage of mediacl stuff for the most part anyways , i feel for those parents in the USA WHO have has a child with any disease and have to stress over how to pay for a surgery that will save their childs life , i will also be able to stay in his room for the amount of time he has to stay in the hospital and that i am very grateful for i will have none of the financial worries and i can be right beside him , thank you all so much for your kind words and advice and especially to you Aud , you helped both Josh and i understand what to expect ....will keep updated, mich and josh
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Audge
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Daughter Emily has MM

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Re: Any one knowing of MM specialists in Toronto
Reply #3 - Jul 22nd, 2009 at 7:56pm
 
Please let us know the date of the surgery when you know it!!!  We can all pray for a safe surgery and quick recovery!

~Audge
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joshandmom9770
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Re: Any one knowing of MM specialists in Toronto
Reply #4 - Nov 11th, 2009 at 8:09am
 
Joshs surgery is Nov 24 , he will be admitted on the 23rd , i will keep you all updated , thank you so much for all your kind words and info .Michele and Josh
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Mammaof4
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Re: Any one knowing of MM specialists in Toronto
Reply #5 - Nov 17th, 2009 at 1:52pm
 
My daughter, Hannah just had her surgery on Nov 10 at St. Michaels Hospital in Toronto. The Dr. was Dr. Lock Macdonald.
Here is his website, http://www.surg.med.utoronto.ca/faculty/macdonald_l.html.
Good luck, you are in my prayers.
Les
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joshandmom9770
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Re: Any one knowing of MM specialists in Toronto
Reply #6 - Nov 18th, 2009 at 12:46am
 
Thank you so much for that info ,
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b1uesmiley
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Re: Any one knowing of MM specialists in Toronto
Reply #7 - Oct 7th, 2010 at 1:48am
 
Hi, I had an EC/IC Bypass surgery done @ The Toronto Western Hospital in Toronto, Ontario by Dr. Christopher Wallace. I must say he has great bedside manners. Unfortunetly the surgery fell in the 10% of unsuccessful surgeries. This happened due to my blood veins being too small to attach to the artery.

Nevertheless, I thought to share this with you, as it might be useful. By the way, I am a 31 yr old female.
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